Evidence map›Paper›PMID 34738910›Full record

ArticleJMIR formative research2021

A Virtual Community for Disability Advocacy: Development of a Searchable Artificial Intelligence-Supported Platform.

Christo El Morr, Pierre Maret, Fabrice Muhlenbach, Dhayananth Dharmalingam, Rediet Tadesse, Alexandra Creighton, Bushra Kundi, Alexis Buettgen, Thumeka Mgwigwi, Serban Dinca-Panaitescu and 2 more

Abstract read
In one paragraph

Article in JMIR formative research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
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  4. Review
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Christo El MorrSchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-6287-3438
Pierre MaretCNRS, UMR 5516, Laboratoire Hubert Curien, Université Jean Monnet Saint Etienne, Saint Etienne, France.ORCID https://orcid.org/0000-0001-5437-7725
Fabrice MuhlenbachCNRS, UMR 5516, Laboratoire Hubert Curien, Université Jean Monnet Saint Etienne, Saint Etienne, France.ORCID https://orcid.org/0000-0002-1825-4290
Dhayananth DharmalingamCNRS, UMR 5516, Laboratoire Hubert Curien, Université Jean Monnet Saint Etienne, Saint Etienne, France.ORCID https://orcid.org/0000-0002-4682-8992
Rediet TadesseCNRS, UMR 5516, Laboratoire Hubert Curien, Université Jean Monnet Saint Etienne, Saint Etienne, France.ORCID https://orcid.org/0000-0002-7179-5555
Alexandra CreightonSchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-7573-221X
Bushra KundiSchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-9581-8531
Alexis BuettgenSchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-7370-723X
Thumeka MgwigwiStudent Learning and Academic Success Department, York University Libraries, York University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-9757-8084
Serban Dinca-PanaitescuSchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-2620-4389
Enakshi DuaSchool of Gender, Sexuality and Women's Studies, York University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-2554-2028
Rachel GormanSchool of Health Policy and Management, Faculty of Health, York University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-3144-1733

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe lack of availability of disability data has been identified as a major challenge hindering continuous disability equity monitoring. It is important to develop a platform that enables searching for disability data to expose systemic discrimination and social exclusion, which increase vulnerability to inequitable social conditions.

objectiveOur project aims to create an accessible and multilingual pilot disability website that structures and integrates data about people with disabilities and provides data for national and international disability advocacy communities. The platform will be endowed with a document upload function with hybrid (automated and manual) paragraph tagging, while the querying function will involve an intelligent natural language search in the supported languages.

methodsWe have designed and implemented a virtual community platform using Wikibase, Semantic Web, machine learning, and web programming tools to enable disability communities to upload and search for disability documents. The platform data model is based on an ontology we have designed following the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The virtual community facilitates the uploading and sharing of validated information, and supports disability rights advocacy by enabling dissemination of knowledge.

resultsUsing health informatics and artificial intelligence techniques (namely Semantic Web, machine learning, and natural language processing techniques), we were able to develop a pilot virtual community that supports disability rights advocacy by facilitating uploading, sharing, and accessing disability data. The system consists of a website on top of a Wikibase (a Semantic Web-based datastore). The virtual community accepts 4 types of users: information producers, information consumers, validators, and administrators. The virtual community enables the uploading of documents, semiautomatic tagging of their paragraphs with meaningful keywords, and validation of the process before uploading the data to the disability Wikibase. Once uploaded, public users (information consumers) can perform a semantic search using an intelligent and multilingual search engine (QAnswer). Further enhancements of the platform are planned.

conclusionsThe platform ontology is flexible and can accommodate advocacy reports and disability policy and legislation from specific jurisdictions, which can be accessed in relation to the CRPD articles. The platform ontology can be expanded to fit international contexts. The virtual community supports information upload and search. Semiautomatic tagging and intelligent multilingual semantic search using natural language are enabled using artificial intelligence techniques, namely Semantic Web, machine learning, and natural language processing.

Indexed as

communityCRPDdisabilitydisability rightsequityethicshealth informaticshuman rightsmachine learningnatural language processingpilotplatformrightsSemantic Webvirtual communityweb intelligenceWikibase

Identifiers

PMID34738910
PMCPMC8663581

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.