ArticleAmerican journal of speech-language pathology2022
Creation of a Community-Driven Decision Support Tool for Caregivers of Children With Developmental Concerns.
Article in American journal of speech-language pathology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Combining Subjective Perceptions and Objective Behavioral Metrics With the Elderly Digital Twin System: Quantitative Usability Study.JMIR aging · 2026Article
- Prologue: Implementation Science in CSD and Starting Where You Are.American journal of speech-language pathology · 2022Review
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Authors and funding
6 authors.
Funding
Abstract
purposeDespite increasing standardization of developmental screening and referral processes, significant early intervention service disparities exist. The aims of this article are to: (a) describe methods used to develop a decision support tool for caregivers of children with developmental concerns, (b) summarize key aspects of the tool, and (c) share preliminary results regarding the tool's acceptability and usability among key stakeholders.
methodContent and design of the decision support tool was guided by a systematic process outlined by the International Patient Decision Aid Standards (IPDAS) Collaborative. Three focus group interviews were conducted with caregivers (
resultsThe decision support tool leverages images and plain language text to guide caregivers and professionals along key steps of the early identification to service use pathway. Participants identified four themes central to shared decision making: trust, cultural humility and respect, strength-based conversations, and information-sharing. End-users found the tool to be acceptable and useful.
conclusionsThe decision support tool described offers an individualized approach for exploring beliefs about child development and developmental delay, considering service options within the context of the family's values, priorities, and preferences, and outlining next steps. Additional research regarding the tool's effectiveness in optimizing shared decision-making and reducing service use disparities is warranted.
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