ArticleEuropean journal of cancer care2022
Shared decision making in cancer treatment: A Dutch national survey on patients' preferences and perceptions.
Article in European journal of cancer care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed, 32 citations in OpenAlex.
- Real-world implementation of a decision aid for treatment decisions in metastatic pancreatic cancer: a prospective multicenter study across expert centers.The oncologist · 2026Observational
- Best supportive care in stage I-III non-small cell lung cancer: survival by reason for curative treatment omission in a real-world study population.Translational lung cancer research · 2026Article
- In their own words: A qualitative study of patient narratives on daily life after breast cancer radiotherapy.PEC innovation · 2026Article
- Empowering choices: insights from healthcare professionals on shared decision-making in kidney cancer.BJU international · 2026Article
- Beyond Lip Service: A Position Paper to Truly Stimulate Shared Decision-Making.Journal of advanced nursing · 2026Article
- Patients and healthcare professionals' perspectives on the implementation of shared decision making in multiple myeloma: a multinational qualitative study.BMC medical informatics and decision making · 2025Article
- The German 12-Item Brief Form of the Cancer Behavior Inventory (CBI-B-D-12): Factor Structure, Reliability, and Criterion Validity.Psycho-oncology · 2025Article
- Bridging the care gap: patients' needs and experiences regarding shared decision-making in radiotherapy.Clinical and translational radiation oncology · 2025Article
- Factors Influencing Decision-Making Preferences Among Patients with Inflammatory Bowel Disease: A Cross-Sectional Study in China.Patient preference and adherence · 2025Article
- Improving sustainability of a patient decision aid for systemic treatment of metastatic colorectal cancer: A qualitative study.PEC innovation · 2024Article
- An international field study for the reliability and validity of the EORTC communication questionnaire EORTC QLQ-COMU26.Health and quality of life outcomes · 2024Article
- Barriers and facilitators of healthcare professionals in integrating shared decision-making in pancreatic cancer treatment: A network approach.Cancer medicine · 2024Article
- Advocate-BREAST: advocates and patients' advice to enhance breast cancer care delivery, patient experience and patient centered research by 2025.Archives of public health = Archives belges de sante publique · 2024Article
- How Can We Improve Patient-Clinician Communication for Men Diagnosed with Prostate Cancer?European urology open science · 2024Article
- Patient readiness for shared decision making about treatment: Conceptualisation and development of the ReadyHealth expectations : an international journal of public participation in health care and health policy · 2024Review
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- Patients' preferences in therapeutic decision-making in digestive oncology: a single centre cross-sectional observational study.Scientific reports · 2023Observational
- Facilitating shared decision-making in oncology.Frontiers in psychology · 2023Article
- Patient preferences and experiences of participation in surgical cancer care.Worldviews on evidence-based nursing · 2022Article
Corrections and comments
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Authors and funding
10 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveShared decision making (SDM) for cancer treatment yields positive results. However, it appears that discussing essential topics for SDM is not fully integrated into treatment decision making yet. Therefore, we aim to explore to what extent discussion of therapy options, treatment consequences, and personal priorities is preferred and perceived by (former) cancer patients.
methodsAn online questionnaire was distributed by the Dutch Federation of Cancer Patient Organisations among (former) cancer patients in 2018.
resultsAmong 3785 (former) cancer patients, 3254 patients (86%) had discussed treatments with their health care provider (HCP) and were included for analysis. Mean age was 62.1 ± 11.5; 55% were female. Discussing the option to choose no (further) treatment was rated by 2751 (84.5%) as very important (median score 9/10-IQR 8-10). Its occurrence was perceived by 28% (N = 899), and short- and long-term treatment consequences were discussed in 81% (N = 2626) and 53% (N = 1727), respectively. An unmet wish to discuss short- and long-term consequences was reported by 22% and 26%, respectively. Less than half of the (former) cancer patients perceived that personal priorities (44%) and future plans (34%) were discussed.
conclusionIn the perception of (former) cancer patients, several essential elements for effective SDM are insufficiently discussed during cancer treatment decision making.
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