Trial reportEarly intervention in psychiatry2022
Youth and family members make meaningful contributions to a randomized-controlled trial: YouthCan IMPACT.
Trial report in Early intervention in psychiatry, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05757128 (Optimizing Mental Health for Young People at Clinical High Risk for Psychosis), which is not on this map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Optimizing Mental Health for Young People at Clinical High Risk for Psychosis (CHR)
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review of theories, models and frameworks used for youth engagement in health research.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Integrated Collaborative Care for Youths With Mental Health and Substance Use Challenges: A Randomized Clinical Trial.JAMA network open · 2025Trial
- Minimally important change on the Columbia Impairment Scale and Strengths and Difficulties Questionnaire in youths seeking mental healthcare.BMJ mental health · 2025Trial
- Youth and family members make meaningful contributions to a randomized-controlled trial: YouthCan IMPACT.Early intervention in psychiatry · 2022Trial
- Adolescent views on participating in HIV biomedical research during pregnancy: a qualitative analysis of motivators and barriers.AIDS care · 2026Article
- A review of youth mental health in the U.S.: the current landscape, youth perspectives, and strategies for equitable solutions.Frontiers in health services · 2026Review
- Article
- Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives.Research involvement and engagement · 2024Review
- Article
- Amplifying adolescent and emerging adult voices: Development of a pediatric-to-adult transition research advisory council.Health care transitions · 2024Article
- Embedding lived experience into mental health academic research organizations: Critical reflections.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees.Research involvement and engagement · 2022Article
- Youth Perspectives on Integrated Youth Services: A Discrete Choice Conjoint Experiment.Canadian journal of psychiatry. Revue canadienne de psychiatrie · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundThere are growing calls to engage service users in research about issues relevant to them. Youth and family members can make meaningful contributions to research projects, improving quality and relevance. However, more information is needed on the contributions that youth and family members can make to various study designs.
objectiveThis paper describes the contributions that youth and family members have made to a multi-site pragmatic randomized-controlled trial, YouthCan IMPACT, and the way project-based engagement learnings accelerated change at the institutional level and beyond.
resultsYouth and family members were full members of the project team, including the project's core governance and working groups. They contributed to project leadership, as funding co-applicants and as equal members of the governance team. They were also engaged in study design. Youth defined the primary outcome measure and contributed to decisions on all secondary measures. The service pathway was co-designed with youth and family members; for example, they guided the inclusion of peer support and a family member intervention as core service components. Study implementation contributions included ensuring a youth- and family-friendly research process and training research staff on working with youth and family members. Knowledge translation activities have included youth and family members as co-presenters and manuscript co-authors. The learnings from this trial have been leveraged to expand youth and family engagement at the institution and beyond.
conclusionsYouth and family members make substantial contributions to complex research projects, including randomized-controlled trials, thereby improving project design, study implementation, associated interventions, and knowledge translation.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.