ArticleJournal of the American Medical Informatics Association : JAMIA2022
Transgender and nonbinary individuals and ICT-driven information practices in response to transexclusionary healthcare systems: a qualitative study.
Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 37 citations in OpenAlex.
- The Digital Competences of Exercise Therapists in Obesity Care: A Step Towards Digital Sovereignty Assessed with the DigCompThExO Questionnaire.Healthcare (Basel, Switzerland) · 2026Article
- Contextualizing key principles to promote a justice-oriented informatics research agenda: proceedings and reflections from an American Medical Informatics Association workshop.Journal of the American Medical Informatics Association : JAMIA · 2026Article
- Toward information resilience: Applying intersectionality to the HIV/AIDS information practices of Black sexual minority men.Journal of the Association for Information Science and Technology · 2025Article
- Perceptions of a South Australian online trans health resource: Transnormativity, safety, and professionalism.International journal of transgender health · 2025Article
- Trans people perceptions of care received from healthcare professionals - A phenomenological study.Heliyon · 2024Article
- Assessment of Accuracy, User Engagement, and Themes of Eating Disorder Content in Social Media Short Videos.JAMA network open · 2023Article
- Co-design of the Transgender Health Information Resource: Web-Based Participatory Design.Journal of participatory medicine · 2023Article
- Co-creation of a training for community health workers to enhance skills in serving LGBTQIA+ communities.Frontiers in public health · 2023Article
- Maybe they had a bad day: how LGBTQ and BIPOC patients react to bias in healthcare and struggle to speak out.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Informatics for sex- and gender-related health: understanding the problems, developing new methods, and designing new solutions.Journal of the American Medical Informatics Association : JAMIA · 2022Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThis qualitative research examines how transgender and gender nonbinary (T/GNB) persons from South Carolina navigate informational barriers within healthcare systems. This navigation can be described through the lens of information practices, or how T/GNB participants create, seek, use, and share information to achieve desired healthcare outcomes. Special focus is given to the roles of Information and Communication Technologies (ICTs) in shaping these practices. MATERIALS AND
methodsThe research utilizes participant data from semistructured interviews and focus groups conducted with 26 T/GNB individuals focusing on their health information practices. Data analysis utilized emic/etic coding and the constant comparative method to identify themes describing transexclusionary information barriers and respondent ICT-led information practices.
resultsFindings note healthcare systems producing cisnormativity by design resulting in T/GNB individuals viewing healthcare spaces as exclusionary. Exclusionary barriers included over reliance on medical, expert authority ignoring T/GNB embodiment, and a lack of contextual perspective to identities. In response, T/GNB seek, create, use, and share information via ICTs to challenge exclusionary practices. DISCUSSION: T/GNB ICT use addresses systemic barriers within healthcare systems suggesting a need to reframe healthcare systems through the lens of design justice, one that values T/GNB agency in understanding and producing health knowledge.
conclusionWhile many healthcare providers are not intentionally being transexclusionary, the design of healthcare information systems rely on cisnormative values, thus excluding many T/GNB from accessing healthcare in comfortable and safe ways. Shifting toward the values and practices of T/GNB as informed by ICT use will afford healthcare providers ways to undo barriers to care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.