ArticleJournal of autism and developmental disorders2022
Caring for Children with an Autism Spectrum Disorder: Factors Associating with Health- and Care-Related Quality of Life of the Caregivers.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed.
- The Impact of Caring for a Child With Juvenile Idiopathic Arthritis on Caregiver Quality of Life.ACR open rheumatology · 2026Article
- Multidimensional Correlates of Mental Health and Quality of Life in Chinese Caregivers of Preschool-Aged Autistic Children.Journal of autism and developmental disorders · 2026Article
- Children's disability and caregivers' health-related quality of life in Australia: A nationwide longitudinal study.European journal of pediatrics · 2026Article
- Navigating through the care of children with autism spectrum disorder: parents' lived experiences in a Ghanaian Regional Hospital.BMJ paediatrics open · 2026Article
- The validation of the CarerQol instrument and factors associated with quality of life among informal caregivers of disabled older adults in China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Beyond benchmarks: a narrative review of evolving quality of life frameworks for children with neurodevelopmental and learning disabilities and the need for integrated digital twin approaches.Frontiers in public health · 2026Review
- Mothers' knowledge and home care practices for children with autism spectrum disorder in Diwaniyah, Iraq.Frontiers in child and adolescent psychiatry · 2026Article
- Review
- Capability well-being in mothers and fathers of autistic children: a cross-sectional study from China.BMC psychology · 2025Article
- Social capital and quality of life among caregivers of children with Autism Spectrum Disorder in Mongolia: a cross-sectional study.BMC public health · 2025Article
- Autism spectrum disorders: experience of parents in Kazakhstan.BMC public health · 2025Article
- Quality of life in caregivers of toddlers with autism features.Research in developmental disabilities · 2025Article
- Quality of life among parents of autistic children: questionnaire validation study and multivariate analysis of associated factors.Frontiers in psychiatry · 2025Article
- Association between adherence to behavioral intervention and capability well-being among parents of autistic children: a cross-sectional study from China.BMC psychiatry · 2024Article
- Exploring Sleep in Caregivers of Children with Autism Spectrum Disorder (ASD) and the Relationship to Health-Related Quality of Life (HRQoL) and Family Quality of Life (FQoL).Medicina (Kaunas, Lithuania) · 2023Article
- Caring for Children with Dravet Syndrome: Exploring the Daily Challenges of Family Caregivers.Children (Basel, Switzerland) · 2023Article
- Family health conditions and parental occupational status modify the relationship between pediatric-onset multiple sclerosis and parental health-related quality of life.Multiple sclerosis (Houndmills, Basingstoke, England) · 2023Article
- Preliminary Assessment of the Quality of Life and Daily Burden of Caregivers of Persons with Special Needs: A Questionnaire-Based, Cross-Sectional Survey.International journal of environmental research and public health · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver's internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver's health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver's mental health, coping, and parenting stress in caring for children with ASD.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.