ArticleInternational journal of qualitative studies on health and well-being2021
Informal carers in Sweden - striving for partnership.
Article in International journal of qualitative studies on health and well-being, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it, 25 citations in OpenAlex.
- Support and Its Effect for Persons Affected by COPD and Their Next of Kin - an Systematic Integrative Review.International journal of chronic obstructive pulmonary disease · 2025Pooled it
- Caregivers' Contributions to Heart Failure Self-care: An Updated Systematic Review.The Journal of cardiovascular nursingPooled it
- Invisible Agency in the Search for Healing: Patient and Family Roles in the Care of Hard-to-Heal Wounds in Primary Healthcare.International wound journal · 2026Article
- Contested involvement of family members in service allocation processes in long-term care: a qualitative study.BMC geriatrics · 2026Article
- Navigating the Healthcare System With Chronic Illness: A Qualitative Study of Caregiver Experiences.Scandinavian journal of caring sciences · 2025Article
- Person-Centred Care: State-of-the-Art and Future Perspectives.Current heart failure reports · 2025Review
- Patient Experiences and Prerequisites of Collaboration as Partners in Person-Centred Care: An Interview Study.Nursing open · 2025Article
- Caring and Health of Close Family Members of Frail Older Persons Recently Discharged from Acute Hospital Care: A Comparative Cross-Sectional Study.Nursing reports (Pavia, Italy) · 2024Article
- Designing a Mobile e-Coaching App for Immigrant Informal Caregivers: Qualitative Study Using the Persuasive System Design Model.JMIR mHealth and uHealth · 2023Article
- The Experiences of Close Relatives to Women with Chronic Obstructive Pulmonary Disease Stages III or IV: A Qualitative Study.Nursing reports (Pavia, Italy) · 2023Article
- Practising the ethics of person-centred care balancing ethical conviction and moral obligations.Nursing philosophy : an international journal for healthcare professionals · 2022Review
- A Psychometric Evaluation of the Family Collaboration Scale and an Investigation of How the Close Family of Frail Older Patients Perceive the Collaboration with Healthcare Professionals on Acute Medical Wards at Hospitals in Sweden.Healthcare (Basel, Switzerland) · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeInformal carers have an important role in society through their care and support of their long-term ill relatives. Providing informal care is challenging and can lead to caregiver burden; moreover, many support needs of the carers are not met, leading to confusion, disappointment and frustration. We conducted an interview study to clarify the meaning of support given and received by informal carers to relatives with chronic obstructive pulmonary disease or chronic heart failure.
methodsWe purposively selected and recruited informants via participants in another study, thereby conducting interviews over the phone from June 2016 to May 2017. In total, we conducted 14 interviews with 12 informants. All interviews were transcribed verbatim and the content was analysed using a phenomenological hermeneutical approach. RESULT AND
conclusionOur comprehensive understanding of the meaning of support for these carers is twofold: it is a self-evident struggle for the good life of their relatives and that they want to be
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.