A Value-Added Health Systems Science Intervention Based on My Life, My Story for Patients Living with HIV and Medical Students: Translating Narrative Medicine from Classroom to Clinic.

Jonathan C Chou, Jennifer J Li, Brandon T Chau, Tamar V L Walker, Barbara D Lam, Jacqueline P Ngo, Suad Kapetanovic, Pamela B Schaff, Anne T Vo

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Article in The Journal of medical humanities, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it

0cells of the map it votes in

1citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

Disability and narrative medicine: Challenges and opportunities.Developmental medicine and child neurology · 2024
Review

4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Jonathan C ChouDepartment of Psychiatry, Massachusetts General Hospital/McLean Hospital, 15 Parkman Street, WACC 812, Boston, MA, 02114, USA. jchou5@partners.org.ORCID http://orcid.org/0000-0002-9977-9178

Jennifer J LiKeck School of Medicine of the University of Southern California, Los Angeles, CA, USA.

Brandon T ChauKeck School of Medicine of the University of Southern California, Los Angeles, CA, USA.

Tamar V L WalkerDepartment of Surgery, University of Miami, Miami, FL, USA.

Barbara D LamDepartment of Medicine, Beth Israel Deaconess Medical Center, Boston, MA, USA.

Jacqueline P NgoDepartment of Pediatric Neurology, UCLA Medical Center, Los Angeles, CA, USA.

Suad KapetanovicDepartment of Clinical Psychiatry and Behavioral Sciences, Keck School of Medicine of the University of Southern California, Los Angeles, CA, USA.

Pamela B SchaffDepartment of Medical Education, Family Medicine, and Pediatrics, Keck School of Medicine of the University of Southern California, Los Angeles, CA, USA.

Anne T VoDepartment of Health Systems Science, Kaiser Permanente Bernard J. Tyson School of Medicine, Pasadena, CA, USA.

Funding

southern california clinical and translational science institute UL1TR001855

6 · The paper itself

Abstract

In 2018-2019, at the Keck School of Medicine of the University of Southern California (KSOM), we developed and piloted a narrative-based health systems science intervention for patients living with HIV and medical students in which medical students co-wrote patients' life narratives for inclusion in the electronic health record. The pilot study aimed to assess the acceptability of the "life narrative protocol" (LNP) from multiple stakeholder positions and characterize participants' experiences of the clinical and pedagogical implications of the LNP. Students were recruited from KSOM. Patients and staff were recruited from the Maternal, Child, and Adolescent/Adult Center for Infectious Disease and Virology (MCA) at Los Angeles County+USC Medical Center. Ten patients, seventeen students, and ten MCA staff participated in the pilot study. Qualitative methods were used to gather data from students', patients', and staff's perspectives. Three themes emerged from the thematic analysis: (1) patients' life narratives conveyed their unique life experiences and voices; (2) the protocol could result in wide-ranging effects on HIV care; (3) the LNP enabled students to contribute value to patients' healthcare. Across groups, participants considered the LNP an acceptable intervention. The LNP, its limitations, and implications for HIV care, narrative medicine, and health information technology are presented.

Indexed as

HIV InfectionsNarrative MedicineStudents, MedicalAdolescentAdultChildHumansNarrationPilot ProjectsCommunity-based medical educationCommunity-based participatory researchHIVNarrative medicinePhysician-patient relationship

Identifiers

PMID34719744

DOI10.1007/s10912-021-09714-1

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.