ArticleJournal of autism and developmental disorders2022
Making Research Possible: Barriers and Solutions For Those With ASD and ID.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Examining the Efficacy of Culturally Responsive Interventions for Autistic Children and Their Families: A Meta-Analysis.Journal of autism and developmental disorders · 2025Pooled it
- Research Review: Emotion regulation in individuals with intellectual disability - an integrative review.Journal of child psychology and psychiatry, and allied disciplines · 2026Review
- Electrodermal Activity, Behavior, and Context in Autistic People with High Support Needs: A Retrospective Ecological Study.Healthcare (Basel, Switzerland) · 2026Article
- Computational mechanisms of perception in autism revealed using games inspired by rodent operant tasks.Science advances · 2026Article
- What Factors Have Been the Most Helpful and Harmful and When? Identifying Key Impacts on Psychosocial Development According to Autistic Adults and Caregivers.Journal of autism and developmental disorders · 2026Article
- Unheard Voices: A Systematic Literature Review of Studies Using Self-Report Methods to Gather the Perspectives of Autistic Adults with Intellectual Disability.Autism in adulthood · 2026Article
- Beyond the Outburst: Charting a New Frontier for Understanding and Treating Irritability in Autistic Adults.Autism research : official journal of the International Society for Autism Research · 2026Review
- Developing a consensus research definition for profound autism using a modified Delphi method.Molecular autism · 2026Article
- Co-Creation of a Study Protocol to Assess the Effect of Transcranial Direct Current Stimulation in the Management of Fatigue in Children and Young People With Acquired Brain Injury (Fatiguebrain-tDCS).Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Long-Term Stability of IQ Scores for Children With Neurodevelopmental Disabilities: Stable Global IQ But Unstable Index, Subtest, and Profile IQ Scores.Journal of autism and developmental disorders · 2026Article
- Co-occurring Psychiatric Symptoms in Verbal, School-Aged Children With Autism Spectrum Disorder and at Least Average IQ.Journal of autism and developmental disorders · 2026Article
- Equitable inclusion of people with disabilities in clinical trials: a scoping review.BMJ open · 2026Article
- Prediction by Young Autistic Children from Visual and Spoken Input.Journal of autism and developmental disorders · 2026Article
- "There is No Help:" Caregiver Perspectives on Service Needs for Adolescents and Adults with Profound Autism.Journal of autism and developmental disorders · 2025Article
- A Behavioral Economic Measure of Sensitivity to Social Rewards in Children with and without Autism Spectrum Disorder.Research in autism · 2025Article
- Psychometric Properties of Measuring Tools for Depression in Autistic Youths: A Systematic Review.Journal of autism and developmental disorders · 2025Article
- Understanding Echoics: Identifying Predictive Indicators of Vocal Imitation.The Analysis of verbal behavior · 2025Article
- Exercise Interventions for Autistic People: An Integrative Review of Evidence from Clinical Trials.Current psychiatry reports · 2025Review
- Breaking barriers: a commentary on research gaps in cancer and depression among individuals with intellectual disabilities.International journal for equity in health · 2025Article
- An integrative approach between neurodiversity perspectives and quality of life models for autistic people across the spectrum of support needs.Frontiers in psychiatry · 2025Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
Participation in research can provide direct and indirect benefit to individuals with autism spectrum disorder (ASD), their caregivers, families, and society at large. Unfortunately, individuals with high support needs, including those with intellectual disability, cognitive disability or minimal verbal ability, are often systematically excluded from research on ASD. This limits the ability to generalize discoveries to all people with ASD, and results in a disparity in who benefits from research. This piece outlines the importance and extent of the problem, which is part of a broader lack of inclusivity in ASD research. It also provides examples of studies that have directly addressed issues that arise when conducting inclusive research and makes recommendations for researchers to reduce disparities in research participation.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.