ArticlePloS one2021
The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana.
Article in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 18 citations in OpenAlex.
- Functioning and activity outcomes of the Akwenda Intervention Program for children and young adults with cerebral palsy in Uganda: A cluster-randomized trial.Developmental medicine and child neurology · 2025Trial
- What are structural barriers and facilitators to accessing habilitation or rehabilitation among children with cerebral palsy in low- and middle-income countries? A scoping review.Journal of pediatric rehabilitation medicine · 2026Review
- Disability-related care trajectories in a pluralistic health system: a qualitative study in urban Sierra Leone.BMC public health · 2026Article
- Experiences and challenges of caregivers of children with cerebral palsy in Magba subdivision, Cameroon: a qualitative analysis.BMC neurology · 2026Article
- Health-related quality of life among caregivers of children with cerebral palsy in Sub-Saharan Africa: A systematic review and meta-analysis.PLOS mental health · 2026Article
- Experiences of the caregivers on the healthcare and psychosocial services available for cerebral palsy children in Mangochi district in Malawi.Malawi medical journal : the journal of Medical Association of Malawi · 2025Article
- Centering caregiver voices on caregiving needs of children with neurodevelopmental disorders in low-resource settings.PloS one · 2025Article
- Effectiveness of the Positive deviance and parent facilitator training strategies on the nutritional status of children and youth with cerebral palsy: A quasi-randomised trial with a factorial design.PLOS global public health · 2025Article
- The level and factors associated with caregiver experience among parents of children with cerebral palsy: a cross-sectional study in Southwest China.Frontiers in public health · 2025Article
- Children with disabilities lack access to nutrition, health and WASH services: A secondary data analysis.Maternal & child nutrition · 2024Article
- Family Needs Assessment of Patients with Cerebral Palsy Attending Two Hospitals in Accra, Ghana.Children (Basel, Switzerland) · 2023Article
- The potential of COPCA's coaching for families with infants with special needs in low- and middle-income countries.Frontiers in pediatrics · 2023Article
- Barriers to providing healthcare to children living with cerebral palsy in Ghana: A qualitative study of healthcare provider perspectives.PLOS global public health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 6 institutions in 2 countries.
Funding
Abstract
backgroundResearch on cerebral palsy (CP) has lacked emphasis on knowledge and treatment practices among caregivers, particularly in low- and middle-income countries where socio-cultural contexts encourage a variety of treatment alternatives. In this study, we explored the beliefs and experiences that motivate care-seeking practices among caregivers of children with CP in Ghana.
methodsSemi-structured interviews were conducted with 25 caregivers, 10 medical providers, and 5 alternative providers in the Greater Accra Region. Participant interviews were analyzed using principles adapted from grounded theory. A conceptual model was constructed to illustrate salient patterns and motivational factors influencing care-seeking practices.
resultsParticipants' experiences showed that caregivers initially sought physiotherapy and prescription medications from medical providers. Many of them then transitioned to alternative methods to search for a cure or address specific CP symptoms. Over time, most caregivers discontinued both medical and alternative care in favor of at-home treatment. A few withdrew completely from all forms of care. Cost of treatment, caregiver burden, and stigma strongly inhibited care-seeking outside the home.
conclusionAlthough caregivers were open to exploring a variety of treatment options, at-home treatment was preferred by long-time caregivers for its convenience, low cost, and adaptability to patient and caregiver needs.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.