ArticlePsycho-oncology2022
Stakeholder-informed conceptual framework for financial burden among adolescents and young adults with cancer.
Article in Psycho-oncology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 25 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Characterizing and Addressing Financial Toxicity in Adolescents and Young Adults With Cancer
Leveraging COmmunity Partnered nEeds Navigation to Reduce Unmet Health-related Social Needs Among Caregivers for Adolescent and Younger Adult Cancer Survivors
Who cites it
25 citing papers in PubMed.
- Sources of informal financial support among adolescent and young adult cancer survivors: a mixed methods analysis from the HIAYA CHAT study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Trial
- A conceptual model of cancer care and lived experiences in adolescents and young adults with cancer: results from the multi-national European STRONG AYA project.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Social Risk Prevalence in Adolescent and Young Adult Patients With and Without a History of Cancer.JAMA network open · 2026Article
- Cost Disparities Between Hospital Expenditures and Reimbursement Schemes in Indonesia: A Study on Chemotherapy for Breast Cancer.Asian Pacific journal of cancer prevention : APJCP · 2026Article
- Identifying the Core Functions of a Health Insurance Literacy Program for Adolescent and Young Adult Cancer Survivors.Journal of adolescent and young adult oncology · 2026Article
- Pilot feasibility of a financial and health-related social needs navigation intervention (AYA-NAV) for adolescents and young adults with Cancer: Study protocol for a prospective, single-arm study.Contemporary clinical trials communications · 2025Article
- A life put on hold? Navigating fertility-related considerations after cancer in adolescence and young adulthood (AYA).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- A dyad-based analysis of social support dynamics among adolescent/young adult cancer survivors and their parents from a predominately Hispanic/Latino, socioeconomically disadvantaged, and rural population.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Social Needs in Cancer Survivors: A Scoping Review and Future Directions.Current oncology reports · 2025Article
- Non-monetary burdens of out-of-pocket costs incurred by patients and caregivers for medical care: a scoping review.BMJ open · 2025Article
- Cancer advocacy, barriers and associated factors among adolescents and young adults with cancer in Africa.Ecancermedicalscience · 2025Article
- Financial toxicity among pediatric oncology families during therapy and early survivorship: a qualitative analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Material, Psychological, and Behavioral Financial Hardship Among Lesbian, Gay, and Bisexual Cancer Survivors in the United States.JCO oncology practice · 2024Article
- Asking the "Right" Questions about Financial Hardship: Using Cognitive Interviews with Adolescents and Young Adults with Cancer and Their Caregivers to Inform Measure Development.Journal of adolescent and young adult oncology · 2024Article
- A Patient-Centered Conceptual Model of AYA Cancer Survivorship Care Informed by a Qualitative Interview Study.Cancers · 2024Article
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- Using Real-World Data to Explore the Impact of One-Time Financial Grants Among Young Adult Cancer Survivors.Journal of adolescent and young adult oncology · 2023Article
- Financial hardship differences by LGBTQ+ status among assigned female at birth adolescent and young adult cancer survivors: a mixed methods analysis.Cancer causes & control : CCC · 2023Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
backgroundCancer and its treatments can result in substantial financial burden that may be especially distressing for adolescents and young adults (AYAs) since they are at a developmental stage focused on completing one's education and establishing independence. The purpose of this study was to develop a conceptual model of financial burden among AYA cancer patients to inform development of a financial burden measure.
methodsIn-depth concept elicitation interviews were conducted with a purposive-selected stakeholder sample (36 AYAs and 36 AYA oncology health care providers). The constant comparative method was used to identify themes that illustrate AYAs' experience of financial burden by stakeholder groups.
resultsEleven financial burden themes emerged: (1) impact of socioeconomic status and age; (2) significant cancer costs; (3) indirect cost "ripple effects"; (4) limited awareness of costs (adolescents); (5) emotional impact; (6) feeling overwhelmed navigating the health care system; (7) treatment decision modifications; (8) reducing spending; (9) coping strategies; (10) financial support; and (11) long-lasting impact. The conceptual model highlights the importance of material, psychosocial, and behavioral domains of financial burden with an emphasis on phase along the cancer continuum and developmental stage in the experience of financial burden for AYAs.
conclusionsIssues presented in the voice of AYA patients and providers highlight the profound impact of financial burden in this survivor group. The next step in this work will be to develop and test a patient-reported measure of financial burden among AYA cancer survivors.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.