Evidence map›Paper›PMID 34698124›Full record

ArticleDiseases (Basel, Switzerland)2021

Neglected Needs of Family Caregivers during the COVID-19 Pandemic and What They Need Now: A Qualitative Study.

Jasneet Parmar, Sharon Anderson, Bonnie Dobbs, Peter George J Tian, Lesley Charles, Jean Triscott, Jennifer Stickney-Lee, Suzette Brémault-Phillips, Sandy Sereda, Lisa Poole

Open access · goldAbstract read
In one paragraph

Article in Diseases (Basel, Switzerland), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed
7.5field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 52 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 2 countries.

Jasneet ParmarDivision of Care of the Elderly, Department of Family Medicine, University of Alberta, Edmonton, AB T6G 2T4, Canada.
Sharon AndersonDivision of Care of the Elderly, Department of Family Medicine, University of Alberta, Edmonton, AB T6G 2T4, Canada.ORCID 0000-0002-6740-1509
Bonnie DobbsDivision of Care of the Elderly, Department of Family Medicine, University of Alberta, Edmonton, AB T6G 2T4, Canada.
Peter George J TianDivision of Care of the Elderly, Department of Family Medicine, University of Alberta, Edmonton, AB T6G 2T4, Canada.
Lesley CharlesDivision of Care of the Elderly, Department of Family Medicine, University of Alberta, Edmonton, AB T6G 2T4, Canada.ORCID 0000-0003-2127-3502
Jean TriscottDivision of Care of the Elderly, Department of Family Medicine, University of Alberta, Edmonton, AB T6G 2T4, Canada.ORCID 0000-0002-6383-5887
Jennifer Stickney-LeeDivision of Care of the Elderly, Department of Family Medicine, University of Alberta, Edmonton, AB T6G 2T4, Canada.
Suzette Brémault-PhillipsDepartment of Occupational Therapy, University of Alberta, Edmonton, AB T6G 2G4, Canada.ORCID 0000-0003-4167-1815
Sandy SeredaCaregivers Alberta, Edmonton, AB T5B 1R1, Canada.
Lisa PooleDementia Advocacy Canada, Dementia Network Calgary's Strategic Council, Gordie Howe C.A.R.E.S. & the Brenda Strafford Foundation Dementia Friendly Communities, Calgary, AB T3B 0K7, Canada.
University of Alberta · CAAlberta Health Services · CAToronto Dementia Research Alliance · CA

Funding

Northern Alberta Academic Family Medicine Fund Non number
6 · The paper itself

Abstract

COVID-19 has had a negative impact on family caregivers, whether the care receivers lived with the caregiver, in a separate community home, in supportive living, or in long-term care. This qualitative study examines the points of view of family caregivers who care in diverse settings. Family caregivers were asked to describe what could have been done to support them during the COVID-19 pandemic and to suggest supports they need in the future as the pandemic wanes. Thorne's interpretive qualitative methodology was employed to examine current caregiver concerns. Thirty-two family caregivers participated. Family caregivers thought the under-resourced, continuing care system delayed pandemic planning, and that silos in health and community systems made caregiving more difficult. Family caregivers want their roles to be recognized in policy, and they cite the need for improvements in communication and navigation. The growth in demand for family caregivers and their contributions to the healthcare system make it critical that the family caregiver role be recognized in policy, funding, and practice.

Indexed as

caregiving trajectorycontinuing careCOVID-19family caregiversinformal caregiversinterpretive descriptionnavigationunpaid caregivers

Identifiers

PMID34698124
PMCPMC8544374
OpenAlexW3207793656

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.