ArticleReproductive biomedicine & society online2022
The missed disease? Endometriosis as an example of 'undone science'.
Article in Reproductive biomedicine & society online, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
45 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Low-FODMAP Diet for Gastrointestinal Symptoms in Endometriosis: A Systematic Review.Nutrients · 2026Pooled it
- Validity of the screening for early endometriosis detection (SEED) screening tool: protocol for a cross-sectional study.BMJ open · 2026Article
- "I don't know how to treat you": Testosterone and gynecological care for transmasculine and gender diverse adults.Social science & medicine (1982) · 2026Article
- N-Acetylcysteine in Endometriosis: A Systematic Review of Biological Rationale and Clinical Evidence.Antioxidants (Basel, Switzerland) · 2026Review
- A Review of the Potential Therapeutic Benefits of Quercetin for Uterine-Related Conditions.Biomedicines · 2026Review
- Evaluating Subtypes of Endometriosis in Rhesus Macaques (Macaca mulatta) Using Clinical Findings and Immunohistochemistry.Journal of the American Association for Laboratory Animal Science : JAALAS · 2026Article
- Online-CBT for endometriosis: Exploring the acceptability and impact of the Ed.iTh program.Internet interventions · 2026Article
- Between Helping and Harming: Diagnosing Medical Violence in the Case of Endometriosis.Violence against women · 2026Article
- Information Needs of Women Affected by Endometriosis and Their Environment: Qualitative Results from Participatory Workshops.Healthcare (Basel, Switzerland) · 2026Article
- Decoding menstrual health across the lifespan: a scoping review of digital health tools in research.medRxiv : the preprint server for health sciences · 2026Article
- The impact of endometriosis on educational and professional pathways: a cross-sectional online study.BMC psychology · 2026Article
- Decoding menstrual health across the lifespan: a scoping review of digital health tools in research.npj women's health · 2026Article
- Anything but Endo: Diagnostic Buck-Passing in Endometriosis Diagnosis.Sociology of health & illness · 2026Article
- Nerve-adjacent endometriosis mimicking a suprapubic nerve sheath tumor: illustrative case.Journal of neurosurgery. Case lessons · 2025Article
- Living with acuteness in chronic illness: The temporal underpinnings of endometriosis.Medical anthropology quarterly · 2025Article
- Self-tracking in endometriosis: Evolving expectations around a gynecological app developed by a Finnish patient organization.Social studies of science · 2025Article
- Slippery Knowledge: Ignorance, Ecologies, and Environment in Endometriosis Framing.Medical anthropology quarterly · 2025Article
- Medical gaslighting as a threat to beneficence and patient autonomy: a qualitative study.BMC medical ethics · 2025Article
- ESHRE's key research priorities in infertility: maximizing impact on science, people and society†.Human reproduction (Oxford, England) · 2025Article
- Informing the Design of Individualized Self-Management Regimens from the Human, Data, and Machine Learning Perspectives.ACM transactions on computer-human interaction : a publication of the Association for Computing Machinery · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Endometriosis is a chronic gynaecological condition which has been referred to as the 'missed disease' due to its unclear aetiology and inconsistencies in its diagnosis and management. Unlike other long-term conditions such as diabetes and asthma, endometriosis has remained largely ignored in government policy and research funding globally. Drawing on scholarship from the growing field of 'ignorance studies', this paper considers how ambiguity around endometriosis is part of a wider constellation of discursive, material and political factors which enrol certain forms of knowledge whilst silencing, ignoring or marginalizing other forms of knowledge. It uses concepts of 'undone science' and 'wilful ignorance' to explore how an absence of knowledge on endometriosis is a result of structural, cultural and political processes and forces which privilege certain voices and communities. This paper suggests that the association of endometriosis with historically specific constructions of menstruation and women's pain has informed contemporary imaginaries around the condition, including ideas about women being somehow accountable for their own illnesses. Applying an ignorance lens demonstrates how the legacy of invisibility of endometriosis shapes its place in the present political and social arena, and is reflective of a process of undone science. The paper concludes by arguing that the social and political significance of endometriosis as a chronic, life-limiting condition which affects millions of women globally continues to need attention, illumination and critique.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.