Evidence map›Paper›PMID 34686129›Full record

ArticleBMC medical research methodology2021

Response rate of patient reported outcomes: the delivery method matters.

Olaf M Neve, Peter Paul G van Benthem, Anne M Stiggelbout, Erik F Hensen

Abstract read
In one paragraph

Article in BMC medical research methodology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
31citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

31 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Methods to increase response to postal and electronic questionnaires.The Cochrane database of systematic reviews · 2023
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  7. Adaptation and initial psychometric validation of the Latvian version of EORTC QLQ-C30 and QLQ-BR45 in women with breast cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Olaf M NeveDepartment of Otorhinolaryngology and Head & Neck Surgery, Leiden University Medical Center, P.O. Box 9600, 2300 RC, Leiden, Zuid-Holland, The Netherlands. o.m.neve@lumc.nl.ORCID 0000-0002-5104-8448
Peter Paul G van BenthemDepartment of Otorhinolaryngology and Head & Neck Surgery, Leiden University Medical Center, P.O. Box 9600, 2300 RC, Leiden, Zuid-Holland, The Netherlands.ORCID 0000-0002-7946-1912
Anne M StiggelboutMedical Decision Making, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, Zuid-Holland, The Netherlands.ORCID 0000-0002-6293-4509
Erik F HensenDepartment of Otorhinolaryngology and Head & Neck Surgery, Leiden University Medical Center, P.O. Box 9600, 2300 RC, Leiden, Zuid-Holland, The Netherlands.ORCID 0000-0002-4393-7421

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatient Reported Outcomes (PROs) are subjective outcomes of disease and/or treatment in clinical research. For effective evaluations of PROs, high response rates are crucial. This study assessed the impact of the delivery method on the patients' response rate.

methodsA cohort of patients with a unilateral vestibular schwannoma (a condition with substantial impact on quality of life, requiring prolonged follow-up) was assigned to three delivery methods: email, regular mail, and hybrid. Patients were matched for age and time since the last visit to the outpatient clinic. The primary outcome was the response rate, determinants other than delivery mode were age, education and time since the last consultation. In addition, the effect of a second reminder by telephone was evaluated.

resultsIn total 602 patients participated in this study. The response rates for delivery by email, hybrid, and mail were 45, 58 and 60%, respectively. The response rates increased after a reminder by telephone to 62, 67 and 64%, respectively. A lower response rate was associated with lower level of education and longer time interval since last outpatient clinic visit.

conclusionThe response rate for PRO varies by delivery method. PRO surveys by regular mail yield the highest response rate, followed by hybrid and email delivery methods. Hybrid delivery combines good response rates with the ease of digitally returned questionnaires.

Indexed as

Electronic MailQuality of LifeHumansPatient Reported Outcome MeasuresSurveys and QuestionnairesTelephoneDelivery methodPatient-reported outcomeResponse rateVestibular schwannoma

Identifiers

PMID34686129
PMCPMC8540148

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.