Evidence map›Paper›PMID 34678105›Full record

ArticleThe Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association2022

Follow-Up Care Barriers for Patients with Orofacial Clefts.

Joshua Van Swol, Bethany J Wolf, Julia Toumey, Phayvanh Pecha, Krishna G Patel

Open access · greenAbstract read
In one paragraph

Article in The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact, top 87% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 3 citations in OpenAlex.

  1. Burden of Travel is not Associated with Adherence to Follow-up Appointments - A Call for Centralization of Cleft Care in Germany.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Joshua Van SwolCollege of Medicine, 2345Medical University of South Carolina, Charleston, SC, USA.ORCID 0000-0002-2478-9865
Bethany J WolfDepartment of Public Health Sciences, 2345Medical University of South Carolina, Charleston, SC, USA.
Julia ToumeyCraniofacial Anomalies and Cleft Palate Team, 2345Medical University of South Carolina, Charleston, SC, USA.
Phayvanh PechaDepartment of Otolaryngology-Head and Neck Surgery, 2345Medical University of South Carolina, Charleston, SC, USA.
Krishna G PatelDepartment of Otolaryngology-Head and Neck Surgery, 2345Medical University of South Carolina, Charleston, SC, USA.
Medical University of South Carolina · US

Funding

South Carolina Clinical & Translational Research Institute (SCTR)UL1TR001450 · NCATS · MEDICAL UNIVERSITY OF SOUTH CAROLINA · PI BRADY, KATHLEEN T., FLUME, PATRICK A · 2015 to 2024
$41.1M
NCATS NIH HHS UL1 TR001450
6 · The paper itself

Abstract

objectiveThe aim of this study was to evaluate whether a patient with a cleft's age, associated syndrome, cleft phenotype or travel distance affects their follow-up rate.

designThis study is a retrospective review of patients with CL/P treated by a craniofacial clinic.

settingThe setting was a craniofacial clinic at a tertiary care university hospital. PATIENTS,

participantsCandidates were patients seen by the craniofacial clinic between January 2007 and December 2019. An initial pool of 589 patients was then reduced to 440 due to exclusion criteria.

interventionsNone. MAIN OUTCOME MEASURE(S): The outcome measure was actual patient attendance to the craniofacial team compared to the team goal expectation of annual return visits.

resultsThe mean age of participants at the end of the study was 9.0 ±  5.4 years with a mean follow-up period (total possible follow-up period length based on patient age at presentation and study window) of 5.5 ±  3.6 years. There was no association between cleft phenotype, type of syndrome, or distance to the clinic with attendance. Children with syndromes had an 11% decrease in the odds of attending follow-up visits with each 1-year increase in age compared to a 4% decrease in children without syndromes.

conclusionsThe only significant factors determining patient attendance were the presence of a syndrome and increasing age.

Indexed as

Cleft LipCleft PalateAftercareHumansRetrospective Studiesbarriers to carecleft lip and palatedistance to care centerpatient follow-upsyndrome

Identifiers

PMID34678105
PMCPMC10731588
OpenAlexW3206998252

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.