Evidence map›Paper›PMID 34676792›Full record

ArticlePalliative medicine2021

Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic.

Emily Harrop, Silvia Goss, Damian Farnell, Mirella Longo, Anthony Byrne, Kali Barawi, Anna Torrens-Burton, Annmarie Nelson, Kathy Seddon, Linda Machin and 7 more

Abstract read
In one paragraph

Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
40citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

40 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Trial
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Review
  15. Article
  16. Article
  17. Review
  18. Article
  19. Review
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Emily HarropMarie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.ORCID 0000-0003-2820-0023
Silvia GossMarie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.ORCID 0000-0002-9728-5756
Damian FarnellSchool of Dentistry, Cardiff University, Cardiff, UK.
Mirella LongoMarie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.
Anthony ByrneMarie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.ORCID 0000-0002-1413-1496
Kali BarawiMarie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.
Anna Torrens-BurtonPRIME Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.ORCID 0000-0002-2162-3739
Annmarie NelsonMarie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.ORCID 0000-0002-6075-8425
Kathy SeddonMarie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.
Linda MachinKeele University, Keele, UK.ORCID 0000-0001-6956-7214
Eileen SuttonPalliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.
Audrey RoulstonQueen's University, Belfast, Northern Ireland, UK.ORCID 0000-0002-7446-6116
Anne FinucaneClinical Psychology, School of Health in Social Science, University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-3056-059X
Alison PennyNational Bereavement Alliance/Childhood Bereavement Network, London, UK.
Kirsten V SmithCentre for Anxiety Disorders and Trauma, Department of Experimental Psychology, University of Oxford, Oxford, UK.ORCID 0000-0002-6973-2846
Stephanie SivellMarie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK.ORCID 0000-0003-0253-1860
Lucy E SelmanPalliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.ORCID 0000-0001-5747-2699

Funding

Medical Research Council MR/V001841/1
6 · The paper itself

Abstract

backgroundThe COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure.

aimTo investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic.

designBaseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data. SETTING/

participants711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations.

resultsHigh-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%,

conclusionsPeople bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation.

Indexed as

BereavementCOVID-19AdultGriefHumansPandemicsSARS-CoV-2Social SupportBereavementbereavement servicescoronavirus infectionsgriefpandemicssocial support

Identifiers

PMID34676792
PMCPMC8637353

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.