ArticleLearning health systems2021
A learning health systems approach to integrating electronic patient-reported outcomes across the health care organization.
Article in Learning health systems, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Can prediction models for hospital readmission be improved by incorporating patient-reported outcome measures? A systematic review and narrative synthesis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Pooled it
- Making Patient-reported Outcome Measures Patient-friendly: Applying "Patient-reported Outcomes Tools: Engaging Users and Stakeholders" Guidelines to a Graphical "Report Card" for Cleft Outcomes.Plastic and reconstructive surgery. Global open · 2026Article
- Review
- A mixed-methods study comparing clinical and patient-reported perspectives on long COVID: insights from electronic health records and narrative journal entries.BMC infectious diseases · 2026Observational
- Evaluating health organization readiness for implementing a learning health system: a scoping review.Health research policy and systems · 2025Article
- Evaluating for learning and sustainability (ELS) framework: a realist synthesis.BMC health services research · 2025Article
- Identifying Patient-Reported Care Experiences in Free-Text Survey Comments: Topic Modeling Study.JMIR medical informatics · 2025Article
- Promoting Digital Health Data Literacy: The Datum Project.JMIR formative research · 2025Article
- Promoting Electronic Patient-Reported Outcomes in Quality Measurement.Journal of general internal medicine · 2024Article
- A protocol for the formative evaluation of the implementation of patient-reported outcome measures in child and adolescent mental health services as part of a learning health system.Health research policy and systems · 2024Article
- Enhancing data practices for Whole Health: Strategies for a transformative future.Learning health systems · 2024Article
- A human centered design approach to define and measure documentation quality using an EHR virtual simulation.PloS one · 2024Article
- Evaluating a learning health system initiative: Lessons learned during COVID-19 in Saskatchewan, Canada.Learning health systems · 2023Article
- Advancing rapid adaptation for urgent public health crises: Using implementation science to facilitate effective and efficient responses.Frontiers in public health · 2022Article
- A learning health systems approach to integrating electronic patient-reported outcomes across the health care organization.Learning health systems · 2021Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
introductionFoundational to a learning health system (LHS) is the presence of a data infrastructure that can support continuous learning and improve patient outcomes. To advance their capacity to drive patient-centered care, health systems are increasingly looking to expand the electronic capture of patient data, such as electronic patient-reported outcome (ePRO) measures. Yet ePROs bring unique considerations around workflow, measurement, and technology that health systems may not be poised to navigate. We report on our effort to develop generalizable learnings that can support the integration of ePROs into clinical practice within an LHS framework.
methodsGuided by action research methodology, we engaged in iterative cycles of planning, acting, observing, and reflecting around ePRO use with two primary goals: (1) mobilize an ePRO community of practice to facilitate knowledge sharing, and (2) establish guidelines for ePRO use in the context of LHS practice. Multiple, emergent data collection activities generated generalizable
resultsThree core thematic areas (and 24 guidelines) emerged. The theme of
conclusionsThe guidelines produced from this work highlight the complex, multidisciplinary nature of implementing change within LHS contexts, and the value of action research approaches to enable rapid, iterative learning that leverages the knowledge and experience of communities of practice.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.