ArticleBMC oral health2021
Oral health issues of young adults with severe intellectual and developmental disabilities and caregiver burdens: a qualitative study.
Article in BMC oral health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.
- Pooled it
- Oral hygiene changes & compliance with telemonitoring device in individuals with intellectual/developmental disabilities: a randomized controlled crossover trial.Clinical oral investigations · 2024Trial
- mHealth for Oral Care in Aging: A Narrative Review of Mobile Applications for Older Adults and Caregivers.Dentistry journal · 2026Review
- Current Orthodontic Education Status on Treating Patients With ASD and/or ADHD in North America.Journal of dental education · 2026Article
- Comparative assessment of oral hygiene awareness and periodontal knowledge among caregivers of children with and without intellectual disabilities: a cross-sectional comparative study.BMC oral health · 2026Article
- Introducing a holistic model of oral health-related quality of life (OHRQoL) for individuals with disabilities.European archives of paediatric dentistry : official journal of the European Academy of Paediatric Dentistry · 2025Article
- Perceptions of an oral health education program for persons with disabilities among community-based rehabilitation centre managers: a qualitative study.Canadian journal of dental hygiene : CJDH = Journal canadien de l'hygiene dentaire : JCHD · 2024Article
- Determinants of dental care use in patients with rare diseases: a qualitative exploration.BMC oral health · 2023Article
- Oral Health Barriers for African American Caregivers of Autistic Children.International journal of environmental research and public health · 2022Article
- The Effectiveness of Sensory Adaptive Dental Environments to Reduce Corresponding Negative Behaviours and Psychophysiology Responses in Children and Young People with Intellectual and Developmental Disabilities: A Protocol of a Systematic Review and Meta-Analysis.International journal of environmental research and public health · 2022Article
- Malocclusion complexity and orthodontic treatment need in children with autism spectrum disorder.Clinical oral investigations · 2022Article
- Article
- Article
- Exploring the Barriers and Expectations Towards Health Care Services Among Parents/Caretakers of People with Intellectual Disability in Kuantan, Malaysia: A Qualitative Study.Journal of International Society of Preventive & Community DentistryArticle
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOral health maintenance is difficult to be achieved alone by patients with special needs and insufficient self-care skills. This study aims to investigate how the oral health issues of young adults with severe intellectual and developmental disabilities (IDD) affect caregiver burdens.
methodsA qualitative research method was employed with semi-structured interviews conducted with 14 maternal caregivers of patients with severe IDD. Eleven young adults had neurofunctional disorders and three had autism spectrum disorders. All recorded data were transcribed verbatim and subjected to thematic analysis.
resultsThree themes emerged from the main agenda: predisposing oral dysfunction, home care challenges, and professional treatment barriers. The severity of the disabilities had an impact on oral disease risks that increased as patients aged. Participants indicated that, among the daily living activities of their patients, toothbrushing was a particular hardship due to their dysphagia and behavioral issues. Factors impacting on dental treatment indicated by caregivers included social, emotional, and financial circumstances.
conclusionsDysphagia and behavioral issues of adult patients with severe IDD contributed to caregiver burdens in the dental care of the patients. Caregiver burdens and barriers to treatment were mutual factors hindering adequate interventions in dealing with dental problems of the patients.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.