ArticleBMC palliative care2021
How nurses support family caregivers in the complex context of end-of-life home care: a qualitative study.
Article in BMC palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
37 citing papers in PubMed, 2 syntheses or guidelines pooled it, 108 citations in OpenAlex.
- Nurse-led tele-palliative care for symptom management and family support: A hybrid umbrella review of reviews and primary studies.Palliative & supportive care · 2026Pooled it
- Experiences of death preparedness among family caregivers of terminal patients: a systematic review and meta-synthesis.Frontiers in public health · 2026Pooled it
- From 'Emotional Storm' to Post-Traumatic Growth Among Caregivers of Individuals with Mental Illness and Substance Use Disorders: An Integrative Review.Nursing reports (Pavia, Italy) · 2026Review
- Standing next to but not being part of: relatives' experiences of support from healthcare professionals when general palliative care is provided at home.BMC palliative care · 2026Article
- Nurses' perspectives on caregiver engagement in hematopoietic stem cell transplantation: A qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Improving support for family caregivers: A mixed-methods effect evaluation of an organizational intervention.Palliative & supportive care · 2026Article
- What can we learn from the accounts of lay carers administering end of life medications to a loved one at home? Exploring benefits, challenges and ways to empower patients and carers in the future.Palliative & supportive care · 2025Article
- Conceptualizing end-of-life communication by nursing staff as part of advance care planning with older people: A multiple discipline focus group study.International journal of nursing studies advances · 2025Article
- "I thought he had longer than that": family caregivers' experiences of grief, loss, and bereavement in residential aged care.BMC palliative care · 2025Article
- Quality of end-of-life care, quality of dying and death, and grief in bereaved family caregivers.BMC nursing · 2025Article
- Palliative care conditions managed at home and self-reported challenges experienced by informal home-based caregivers in Rwanda: a qualitative study.BMC palliative care · 2025Article
- Equipping Change Agents: Applying Mixed Methods to Learn About the Outcomes of the Co-Designed Caregiver-Centered Care Champions Education Program.International journal of environmental research and public health · 2025Article
- Article
- The needs of the family caregivers of patients with end-stage chronic obstructive pulmonary disease: a qualitative study in Iran.BMC nursing · 2025Article
- Participants' Perceptions of Advantages and Drawbacks of "Drop-In" Versus "Closed-Group" Formats Related to Cancer Bereavement Program Delivery.Current oncology (Toronto, Ont.) · 2025Article
- Well-Being of Family Caregivers of Individuals with Spinal Cord Injury: The Moderating Effects of Online Versus In-Person Social Support.International journal of environmental research and public health · 2025Article
- Impact of the DEDICATED approach to optimizing palliative care for people with dementia: a multi-method study.BMC health services research · 2025Article
- Development of the nursing practice scale to enhance resilience in family caregivers and evaluation of its reliability and validity.BMC nursing · 2025Article
- Supporting relatives when general palliative care is provided at home- a focus group study based on nurses' experiences.BMC palliative care · 2025Article
- Determinants of quality of life decrease in family caregivers of care-dependent patients: a longitudinal study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily caregivers are crucial in providing end-of-life care at home. Without their care, it would be difficult for many patients to die at home. In addition to providing care, family caregivers also need support for themselves. Nurses could play an important role in supporting family caregivers, but little is known about if and how they do so. The aim of this study is to explore how nurses currently approach and support family caregivers in end-of-life home care and which factors influence their support of family caregivers.
methodsData were collected using semi-structured interviews with 14 nurses from nine home care organisations in the Netherlands, in 2018. Interviews were audio-taped, transcribed verbatim and analysed using a thematic analysis approach.
resultsWe identified two underlying nursing perspectives on supporting family caregivers: an instrumental perspective (seeing family caregivers mostly as collaborative partners in care) and a relational perspective (seeing family caregivers as both providing and needing support). All the interviewed nurses stated that they pay attention to family caregivers' needs. The activities mentioned most often were: identification of support needs, practical education, support in decision-making about the patient's treatment, emotional support, and organising respite care, such as night care, to relieve the family caregiver. The provision of support is usually based on intuition and experience, rather than on a systematic approach. Besides, nurses reported different factors at the individual, organisational and societal levels that influenced their support of family caregivers, such as their knowledge and experience, the way in which care is organised, and laws and regulations.
conclusionsNurses tend to address family caregivers' needs, but such care was affected by various factors at different levels. There is a risk that nursing support does not meet family caregivers' needs. A more reflective approach is needed and evidence-based needs assessment tools may help nurses to systematically assess family caregivers' needs and to provide appropriate support.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.