ArticleApplied clinical informatics2021
Patient Perceptions of Receiving COVID-19 Test Results via an Online Patient Portal: An Open Results Survey.
Article in Applied clinical informatics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 27 citations in OpenAlex.
- Effect of Notes' Access and Complexity on OpenNotes' Utility.Applied clinical informatics · 2022Trial
- Patient-Reported Experiences With Viewing and Understanding Test Results in Patient Portals: Cross-Sectional Survey Analysis.Journal of medical Internet research · 2026Article
- Community perspectives on the return of research results and ownership of data and specimens for brain tumor genomic research.SSM. Qualitative research in health · 2026Article
- Usage and Perceptions of Electronic Patient Records Experienced by Users and Nonusers in the Canton of Vaud, Switzerland: Mixed Methods Study.Journal of medical Internet research · 2026Article
- Patient-Friendly Test Results and Patient-Initiated Messaging Among Adult Outpatients.JAMA network open · 2025Article
- Anticipatory guidance and follow-up regarding online access to test results in the Canadian pediatric setting.Paediatrics & child health · 2025Article
- Repeated Access to Patient Portal While Awaiting Test Results and Patient-Initiated Messaging.JAMA network open · 2025Article
- Article
- Patient and Family Perceptions of Real-Time Access to Electronic Health Information: A Social Media Survey.Applied clinical informatics · 2025Article
- Real-Time Electronic Patient Portal Use Among Emergency Department Patients.JAMA network open · 2024Article
- Shifting Mindsets: The Impact of a Patient Portal on Functioning and Recovery in a Mental Health Setting.Canadian journal of psychiatry. Revue canadienne de psychiatrie · 2024Article
- Disparities in Patient Portal Use Among Adults With Chronic Conditions.JAMA network open · 2024Article
- Behavior Shifts in Patient Portal Usage During and After Policy Changes Around Test Result Delivery and Notification.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.Applied clinical informatics · 2023Review
- "I don't think it should take you three days to tell me my baby is dead." A case of fetal demise: unintended consequences of immediate release of information.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Perspectives of Patients About Immediate Access to Test Results Through an Online Patient Portal.JAMA network open · 2023Article
- eHealth Literacy and Patient Portal Use and Attitudes: Cross-sectional Observational Study.JMIR human factors · 2023Article
- Impact of a switch to immediate release on the patient viewing of diagnostic test results in an online portal at an academic medical center.Journal of pathology informatics · 2023Article
- Laboratory Results Release to Patients under the 21st Century Cures Act: The Eight Stakeholders Who Should Care.Applied clinical informatics · 2023Article
- Characteristics of Adult Primary Care Patients Who Use the Patient Portal: A Cross-Sectional Analysis.Applied clinical informatics · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundIn the United States, attention has been focused on "open notes" and "open results" since the Office of the National Coordinator for Health Information Technology implemented the 21st Century Cures Act Final Rule on information blocking. Open notes is an established best practice, but open results remains controversial, especially for diseases associated with stigma, morbidity, and mortality. Coronavirus disease 2019 (COVID-19) is associated with all three of these effects and represents an ideal disease for the study of open results for sensitive test results.
objectivesThis study evaluates patient perspectives related to receiving COVID-19 test results via an online patient portal prior to discussion with a clinician.
methodsWe surveyed adults who underwent COVID-19 testing between March 1, 2020 and October 21, 2020 who agreed to be directly contacted about COVID-19-related research about their perspectives on receiving test results via a patient portal. We evaluated user roles (i.e., patient vs. care partner), demographic information, ease of use, impact of immediate release, notification of results, impact of viewing results on health management, and importance of sharing results with others.
resultsUsers were mostly patients themselves. Users found the portal easy to use but expressed mixed preferences about the means of notification of result availability (e.g., email, text, or phone call). Users found immediate access to results useful for managing their health, employment, and family/childcare. Many users shared their results and encouraged others to get tested. Our cohort consisted mostly of non-Hispanic white, highly educated, English-speaking patients.
conclusionOverall, patients found open results useful for COVID-19 testing and few expressed increased worries from receiving their results via the patient portal. The demographics of our cohort highlight the need for further research in patient portal equity in the age of open results.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.