Evidence map›Paper›PMID 34643011›Full record

ArticleRespirology (Carlton, Vic.)2022

The needs and well-being of severe asthma and COPD carers: A cross-sectional study.

Eleanor C Majellano, Vanessa L Clark, Peter G Gibson, Juliet M Foster, Vanessa M McDonald

Registry-linked trialAbstract read
PubMed Publisher
In one paragraph

Article in Respirology (Carlton, Vic.), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06046547 (Integrating Palliative Care Education in Pulmonary Rehabilitation), which is not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.5field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06046547 naunknown statusnot on this mapstarted 2023, after this paper: background citation

Integrating Palliative Care Education in Pulmonary Rehabilitation

TypeinterventionalSponsorAveiro UniversityRan2023 to 2026Enrolled58ConditionsChronic Obstructive Pulmonary Disease, Interstitial Lung DiseaseArmsPulmonary rehabilitation integrating education about palliative care, Pulmonary rehabilitation
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 11 citations in OpenAlex.

  1. Article
  2. Review
  3. Article
  4. Review
  5. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Eleanor C MajellanoNational Health and Medical Research Council, Centre for Research Excellence in Severe Asthma and The Priority Research Centre for Health Lungs, The University of Newcastle, Newcastle, New South Wales, Australia.ORCID 0000-0002-9566-5181
Vanessa L ClarkNational Health and Medical Research Council, Centre for Research Excellence in Severe Asthma and The Priority Research Centre for Health Lungs, The University of Newcastle, Newcastle, New South Wales, Australia.
Peter G GibsonNational Health and Medical Research Council, Centre for Research Excellence in Severe Asthma and The Priority Research Centre for Health Lungs, The University of Newcastle, Newcastle, New South Wales, Australia.
Juliet M FosterClinical Management Group, Woolcock Institute of Medical Research and The University of Sydney, Sydney, New South Wales, Australia.
Vanessa M McDonaldNational Health and Medical Research Council, Centre for Research Excellence in Severe Asthma and The Priority Research Centre for Health Lungs, The University of Newcastle, Newcastle, New South Wales, Australia.ORCID 0000-0001-9890-3408
John Hunter Hospital · AUNational Health and Medical Research Council · AUThe University of Sydney · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BACKGROUND AND

objectiveCaring for people with severe asthma and chronic obstructive pulmonary disease (COPD) can impair the quality of life (QoL) of the carer. We aimed to describe the QoL and needs of severe asthma and COPD carers.

methodsCarers of severe asthma (n = 89) and COPD (n = 48) completed an online cross-sectional survey assessing QoL and carer support needs using the Short Form Health Survey 12v2 (SF-12), the Hospital Anxiety and Depression Scale (HADS) and Carers Support Needs Assessment Tool (CSNAT) questionnaires.

resultsCarers of people with severe asthma and COPD were similar in age (mean ± SD 57.78 ± 14.09 vs. 56.93 ± 12.91) and gender (65% female vs. 66%); however, they differed in caring duration (proportion caring for >10 years: 65% vs. 33%, p < 0.002). QoL was impaired in both groups, but there were no significant differences between severe asthma and COPD carers in either of the SF-12 component scores. The HADS scores revealed no difference between groups. Compared to severe asthma carers, COPD carers had significantly greater needs for: 'having time for self' (33% vs. 13%, p = 0.006), 'equipment to help care for relative' (33% vs. 13%, p = 0.006), 'practical help in the home' (35% vs. 18%, p = 0.006) and 'getting a break from caring overnight' (21% vs. 6%, p = 0.023).

conclusionQoL is impaired in carers of people with severe asthma to a similar degree of COPD carers and other debilitating diseases like cancer. These novel data highlight the support needs of severe asthma carers and identifies areas where tailored support is needed to reduce their substantial carer burden.

Indexed as

AsthmaPulmonary Disease, Chronic ObstructiveCaregiversCross-Sectional StudiesFemaleHumansMaleQuality of Lifecaregiving burdenCarer Support Needs Assessment Tool (CSNAT)chronic obstructive pulmonary diseasefamily carerquality of lifesevere asthmawell-being

Identifiers

PMID34643011
OpenAlexW3206749493

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.