ArticleResearch involvement and engagement2021
What has the COVID-19 pandemic taught us about conducting patient and public involvement remotely? Insights from a series of digital meeting observations.
Article in Research involvement and engagement, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed.
- How Do We Achieve Impactful Patient and Public Involvement and Engagement in Statistical Methodology Research? A Qualitative Research Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Embedding Patient and Public Engagement in a Cancer Project: Protocol for a Qualitative Study.JMIR research protocols · 2026Article
- Patient and Public Involvement with Forced Migrants: An Empirical Exploration of Ethical Issues.Journal of bioethical inquiry · 2025Article
- Lessons learned from approaches in COVID-19 risk Communication and community engagement in Malawi: an exploratory study.International journal of qualitative studies on health and well-being · 2025Article
- Shaping the future of primary care in Canada: trainee insights on patient and public engagement in health system transformation research.Health research policy and systems · 2025Article
- Assessing the Quality of an Online Democratic Deliberation on COVID-19 Pandemic Triage Protocols for Access to Critical Care in an Extreme Pandemic Context: Mixed Methods Study.Journal of participatory medicine · 2024Article
- Public and Patient Involvement in Migration Health Research: Eritrean and Syrian Refugees' and Asylum Seekers' Views in Switzerland.Healthcare (Basel, Switzerland) · 2024Article
- Engaging women to set the research agenda for assisted vaginal birth.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Sustaining connections: feasibility and impact of long-term virtual patient engagement.Research involvement and engagement · 2024Article
- Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol.Research involvement and engagement · 2024Review
- Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study.Research involvement and engagement · 2023Article
- Association Between the Characteristics of mHealth Apps and User Input During Development and Testing: Secondary Analysis of App Assessment Data.JMIR mHealth and uHealth · 2023Article
- Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial.Journal of medical Internet research · 2023Article
- International overview of health technology assessment training tools and materials for patients and consumers.International journal of technology assessment in health care · 2023Review
- Participatory evaluation of the process of co-producing resources for the public on data science and artificial intelligence.Research involvement and engagement · 2023Article
- Adapting Patient and Public Involvement processes in response to the Covid-19 pandemic.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Involving people with a lived experience when developing a proposal for Health Technology Assessment research of nonsurgical treatments for pelvic organ prolapse: Process and reflections.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Health Care Professionals' Experiences in Telerehabilitation: Qualitative Content Analysis.JMIR human factors · 2023Article
- Co-production of a feasibility trial of pacing interventions for Long COVID.Research involvement and engagement · 2023Article
- Public contributors' preferences for the organization of remote public involvement meetings in health and social care: A discrete choice experiment study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundDuring the COVID-19 pandemic many work tasks are being done remotely through digital meetings, including PPI in research. Yet, some PPI activities have been paused or cancelled altogether during the pandemic. In this commentary, we share our insights from observing digital meetings with researchers and public contributors, representing vulnerable groups. Additionally, we discuss how remote PPI activities can be understood and improved. MAIN BODY: As part of a PPI evaluation project, live observations were conducted by two trained observers, using a semi-structured observation protocol developed to objectively assess aspects of group dynamics in PPI research meetings with public contributors with experience of seeking refuge and parents facing economic hardship. This project's data collection is ongoing and the insights in this commentary is based on the observers' discussion. We discuss these insights through the lens of the Media Richness Theory, stating that the choice of media we communicate through should be guided by what kind of information we want to communicate to each other. The more complex the information is, the richer the media tool needs to be. For example, information in a text message is more easily misinterpreted than information given in person. This is because meeting in person gives us more information, for example through body language and tone of voice. Based on our experiences from observing digital research meetings, we give suggestions on how to improve digital meetings with public contributors. A few key points are: actively choosing which media to use; being prepared to guide contributors to the chosen media in a way that is suitable for them; and the increased importance of the person chairing the meeting to actively include all participants.
conclusionsWe reach the conclusion that digital meetings with public contributors is possible, but that researchers need to make a commitment and actively work to solve practical issues. Finally, the format and structure of digital meetings should be co-created together with public contributors.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.