ArticleJournal of child and family studies2022
Caregivers' Feeding Experiences and Support of Their Child with Cerebral Palsy.
Article in Journal of child and family studies, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 19 citations in OpenAlex.
- Comparison of eating behaviors and mothers' eating attitudes based on visual function levels in children with cerebral visual impairment.BMC pediatrics · 2025Article
- Experiences of the caregivers on the healthcare and psychosocial services available for cerebral palsy children in Mangochi district in Malawi.Malawi medical journal : the journal of Medical Association of Malawi · 2025Article
- Feeding and swallowing in cerebral palsy: Caregiver burden, quality of life and support needs.The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings · 2025Article
- A New Instrument to Define Parental Fear Regarding Feeding Their Children: A Reliability and Validity Study.Dysphagia · 2025Article
- The evolution of nutrition management in children with severe neurological impairment with a focus on cerebral palsy.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2025Review
- The impact of grandchild caregiving on depression among grandparents: a scoping review.Frontiers in public health · 2025Article
- Who really decides? Feeding decisions 'made' by caregivers of children with cerebral palsy.The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings · 2024Article
- Article
- A Review of Food Texture Modification among Individuals with Cerebral Palsy: The Challenges among Cerebral Palsy Families.Nutrients · 2022Review
- Swallowing Related Problems of Toddlers with Down Syndrome.Journal of developmental and physical disabilities · 2022Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Feeding difficulties are often reported in children with cerebral palsy (CP) and are associated with caregiver stress. This study explored the feeding experiences and support of caregivers with children who have CP. A qualitative approach was used where semi-structured telephone interviews were conducted and audio recorded. Thematic analysis was used to code and analyse the transcribed interview data from the eleven mothers that participated. Four major themes were identified from the data: Child-centred world, Making decisions, Knowing their child, and Seeking and receiving support. Caregivers knew their child's unique needs and made daily decisions around feeding based upon the child's feedback and changing condition. Family support was viewed as important, although the caregivers still reported feeling stressed. Health professional support varied from "amazing" to "frustrating", which contributed to the caregivers' stress. However, no single support strategy was appropriate as their needs or preferences varied. It is recommended that health professionals take an individualised partnership approach with caregivers and their child, with particular attention to those caregivers who lack a friend or family support and those who are physically isolated.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.