ArticleQualitative health research2021
Co-designing an Integrated Care Network With People Living With Parkinson's Disease: From Patients' Narratives to Trajectory Analysis.
Article in Qualitative health research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed.
- Bringing lung cancer above ground through storytelling: Creating a lung cancer advocacy network.PEC innovation · 2026Article
- Transforming Care Across Countries: Lessons from the Integrated Care Networks for Parkinson's Disease Study (iCARE-PD).Movement disorders : official journal of the Movement Disorder Society · 2026Observational
- Using co-design to identify healthcare priorities for patients with incurable head and neck cancer.BMC health services research · 2026Article
- Centering Communities in Global Health: Using Human-Centered Design to Facilitate Collaboration and Intervention Development.Community health equity research & policy · 2025Article
- Health care experiences of people with Parkinson's disease in Australia.BMC geriatrics · 2023Article
- Examining the Role of Narrative in Palliative Care for Parkinson Disease: Changing the Story.Neurology. Clinical practice · 2023Article
- Understanding support systems for Parkinson's disease management in community settings: A cross-national qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Co-Designing an Integrated Care Network with People Living with Parkinson's Disease: A Heterogeneous Social Network of People, Resources and Technologies.Journal of personalized medicine · 2022Article
- Coping Styles in Patients with Parkinson's Disease: Consideration in the Co-Designing of Integrated Care Concepts.Journal of personalized medicine · 2022Article
- Measuring Quality of Life in Parkinson's Disease-A Call to Rethink Conceptualizations and Assessments.Journal of personalized medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
An integrated care model for people living with Parkinson's disease (PD) offers the promise of meeting complex care needs in a person-centered way that addresses fragmentation and improves quality of life. The purpose of our research was to co-design a care delivery model that supports both social and medical care from the perspective of patients and care partners. In the first step of our co-design approach, participants from five countries were invited to share their experiences of living with PD during a narrative interview. A qualitative analysis of these narrative interviews based on the Corbin and Strauss model was done to map out patients' trajectories. Three typical trajectories were identified: (a) the "unpredictable" trajectory, (b) the "situated" trajectory, and (c) the "demanding" trajectory. Based on the analysis of these trajectories, we were able to integrate various patient experiences into the design of an integrated care network.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.