ArticleJournal of medical Internet research2021
Engaging Institutional Stakeholders to Develop and Implement Guidelines for Recruiting Participants in Research Studies Using Social Media: Mixed Methods, Multi-Phase Process.
Article in Journal of medical Internet research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The trial behind it
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Who cites it
8 citing papers in PubMed.
- Enhancing Recruitment in Urinary Incontinence Care: Insights from the EvidenceNOW Managing Urinary Incontinence Initiative.International urogynecology journal · 2026Article
- Designing recruitment strategies for population-based human biomonitoring: evidence on participation and representativeness from Latvia.Archives of public health = Archives belges de sante publique · 2026Article
- Memorable media messages of mental illness and implications for policy support: examining the influences of racial ingroup/outgroup recall.Frontiers in psychology · 2025Article
- Using Social Media to Recruit Participants in Health Care Research: Case Study.Journal of medical Internet research · 2024Article
- Understanding how nurses can effectively utilise social media for increasing public involvement, recruitment and impact dissemination of Clinical Research Trials.Journal of research in nursing : JRN · 2024Article
- Participant recruitment for paediatric research using social media: A practical 'how-to' guide for researchers.Nutrition & dietetics : the journal of the Dietitians Association of Australia · 2023Review
- Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health.Journal of medical Internet research · 2022Article
- Practical social media recommendations for dementia prevention researchers.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundLimited regulatory guidance surrounding the use of social media channels for participant recruitment is an interdisciplinary challenge. Establishing stakeholder-informed procedures is essential for ethical and effective use of social media for participant recruitment.
objectiveThis study aims to provide replicable procedures for developing and implementing guidelines for using social media to recruit participants in research studies.
methodsSocial media use cases at the university were used to identify institutional stakeholders for the initiative. After establishing workflow procedures, a scoping review of web-based materials about recruitment and research on the internet and social media from 19 peer institutions and 2 federal agencies was conducted to inform the structure of the policies and procedures. End users (investigators and study coordinators; N=14) also provided feedback on the policies and procedures and implementation.
resultsRepresentatives (n=7) from 5 institutional offices and 15 subject-matter experts from 5 areas were identified as stakeholders in the development of policies and procedures. Peers with web-based materials (n=16) identified in the scoping review revealed 4 themes that served as a basis for developing our policies and procedures. End user feedback further informed the policies and procedures and implementation. A centrally managed social media account for communicating with participants and hosting advertising campaigns on social media was also established and, when combined with the policies and procedures, resulted in 39 advertising campaigns, and 2846 participants were enrolled in health and clinical research studies.
conclusionsOur policies and procedures allow research teams to harness the potential of social media to increase study recruitment and participation; the transparent, stakeholder-informed process can be replicated by institutional administrators to establish policies and procedures that meet the interests and needs of their research community.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.