Evidence map›Paper›PMID 34618918›Full record

ArticleJournal of the American Geriatrics Society2022

Current practices of family caregiver training during home health care: A qualitative study.

Julia G Burgdorf, Alicia I Arbaje, Jo-Ana Chase, Jennifer L Wolff

Registry-linked trialAbstract readMulticenter Study
In one paragraph

Article in Journal of the American Geriatrics Society, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06860035 (Dementia Caregivers' Link to Assistance and Resources), which is not on this map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06860035 narecruitingnot on this mapstarted 2025, after this paper: background citation

Dementia Caregivers' Link to Assistance and Resources: Supporting Caregivers of Home Health Patients With Dementia

TypeinterventionalSponsorVisiting Nurse Service of New YorkRan2025 to 2026Enrolled200ConditionsAlzheimer Disease or Associated Disorder, DementiaArmsDementia Caregivers' Link to Assistance and Resources (DECLARE)
3 · Its place in the literature

Who cites it

16 citing papers in PubMed.

  1. Article
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  7. YouTube as a possible learning platform for patients and their family caregivers for gastrostomy tube feeding: A cross-sectional study.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2025
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  8. Article
  9. Review
  10. Article
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  13. Prevalence and predictors of incident ADRD diagnosis following a Medicare home health episode.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023
    Article
  14. Article
  15. Article
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Julia G BurgdorfDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.ORCID 0000-0002-3356-1897
Alicia I ArbajeDivision of Geriatric Medicine and Gerontology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Jo-Ana ChaseSinclair School of Nursing, University of Missouri, Columbia, Missouri, USA.ORCID 0000-0002-4402-0308
Jennifer L WolffDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.

Funding

Health Services and Outcomes Research for Aging PopulationsT32AG066576 · NIA · JOHNS HOPKINS UNIVERSITY · PI CYNTHIA Melinda BOYD, Jennifer L. Wolff · 2020 to 2026
$3.8M
NIA NIH HHS T32 AG066576
6 · The paper itself

Abstract

backgroundHome health clinicians report a need for family caregiver assistance during the majority of skilled home health care episodes. Since 2018, the Medicare Conditions of Participation has required home health agencies to provide training to family caregivers. However, little is known regarding current practices of family caregiver assessment and training during home health care.

methodsQualitative research relying on semistructured key informant interviews with registered nurses and physical therapists (n = 19), hereafter "clinicians," from four home health agencies. Interviews were recorded and transcribed, then analyzed using directed content analysis to identify relevant themes and concepts.

resultsThree agencies were not-for-profit and one was for-profit; three were urban and one was rural; two operated on a local scale, one on a regional scale, and one on a national scale. Key informants had an average of 9.3 years of experience in home health care and an average age of 45.0 years. Clinicians described a cyclic process of family caregiver training including four major phases: initial assessment, education, reassessment, and adjustment. Initial assessment was informal and holistic; education was delivered via demonstration and teach-back; reassessment was used to evaluate caregiver progress and inform adjustments to the care plan. Clinicians noted that their perceptions regarding the success of family caregiver training efforts influenced decisions relating to clinical practice, including the number of visits provided and whether to discharge the patient.

conclusionsCaregiver training is currently integrated into clinician workflows in home health care and helps determine visit intensity and discharge timing, but clinicians face a lack of structured assessment instruments or training materials. Efforts by policymakers and home health agencies to facilitate clinicians' training efforts could positively affect the cost and quality of Medicare-funded home health care.

Indexed as

AdultCaregiversFemaleHome Care ServicesHumansMaleMiddle AgedNeeds AssessmentNursesPhysical TherapistsQualitative Researchcaregivingcare partnerseducationfamily caregivershome care agencieshome health carehome health nursingMedicare

Identifiers

PMID34618918
PMCPMC8742751

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.