ArticleJournal of the American Medical Informatics Association : JAMIA2022
Gender harmony: improved standards to support affirmative care of gender-marginalized people through inclusive gender and sex representation.
Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- What do measures of gender identity tell us about gender identity over time?The British journal of developmental psychology · 2025Pooled it
- Improving radiology information systems for inclusivity of transgender and gender-diverse patients: what are the problems and what are the solutions? A systematic review.Journal of medical radiation sciences · 2024Pooled it
- Spectrum and clinical profile of disorders of sex development: A 10 year experience at a tertiary care center.Pakistan journal of medical sciences · 2026Article
- Article
- In defense of empathic informatics.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- If You Seek SOGI: Current State and Practical Implementation Considerations for Health Care Organizations Seeking to Collect Sexual Orientation and Gender Identity (SOGI) Data Domains.Delaware journal of public health · 2025Article
- Sex-Based Bias in Artificial Intelligence-Based Segmentation Models in Clinical Oncology.Clinical oncology (Royal College of Radiologists (Great Britain)) · 2025Review
- Utilization of electronic health record sex and gender demographic fields: a metadata and mixed methods analysis.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Advancing Pediatric Sexual Orientation and Gender Identity Data Collection.American journal of public health · 2024Article
- Advancing healthcare equity through dissemination and implementation science.Health services research · 2023Review
- What's Next for Modernizing Gender, Sex, and Sexual Orientation Terminology in Digital Health Systems? Viewpoint on Research and Implementation Priorities.Journal of medical Internet research · 2023Article
- Words matter: The language of difference in human genetics.Genetics in medicine : official journal of the American College of Medical Genetics · 2023Article
- Will clinical standards not be part of the choir? Harmonization between the HL7 gender harmony project model and the NASEM measuring sex, gender identity, and sexual orientation report in the United States.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Transgender Individuals and Digital Health.Current HIV/AIDS reports · 2022Review
- Maybe they had a bad day: how LGBTQ and BIPOC patients react to bias in healthcare and struggle to speak out.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Pediatric sexual orientation and gender identity data collection in the electronic health record.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Informatics for sex- and gender-related health: understanding the problems, developing new methods, and designing new solutions.Journal of the American Medical Informatics Association : JAMIA · 2022Article
Corrections and comments
- Erratum issued
Authors and funding
8 authors.
Funding
Abstract
objectiveAccurate representation of clinical sex and gender identity in interoperable clinical systems is a major challenge for organizations intent on improving outcomes for sex- and gender-marginalized people. Improved data collection has been hindered by the historical approach that presumed a single, often binary, datum was sufficient. We describe the Health Level Seven International (HL7) Gender Harmony logical model that proposes an improved approach. MATERIALS AND
methodsThe proposed solution was developed via an American National Standards Institute (ANSI)-certified collaborative balloted process. As an HL7 Informative Document, it is an HL7 International-balloted consensus on the subject of representing sex and representing gender in clinical systems based on work of the gender harmony project led by the HL7 Vocabulary Work Group.
resultsThe Gender Harmony Model is a logical model that provides a standardized approach that is both backwards-compatible and an improvement to the meaningful capture of gender identity, recorded sex or recorded gender, a sex for clinical use, the name to use, and pronouns that are affirmative and inclusive of gender-marginalized people.
conclusionMost clinical systems and current standards in health care do not meaningfully address, nor do they consistently represent, sex and gender diversity, which has impeded interoperability and led to suboptimal health care. The Gender Harmony Project was formed to create more inclusive health information exchange standards to enable a safer, higher-quality, and embracing healthcare experience. The Gender Harmony Model provides the informative guidance for standards developers to implement a more thorough technical design that improves the narrow binary design used in many legacy clinical systems.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.