Evidence map›Paper›PMID 34610936›Full record

ArticleBMJ open2021

Disease-related knowledge measurement instruments of people affected by multiple sclerosis: protocol for a systematic psychometric review.

Marina Gonzalez-Del-Rio, Carme Bertran-Noguer, Lluís Ramió-Torrentà, Edurne Zabaleta-Del-Olmo

Abstract read
In one paragraph

Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. A systematic review to explore patients' MS knowledge and MS risk knowledge.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024
    Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Marina Gonzalez-Del-RioNeurodegeneration and Neuroinflammation Research Group, Girona; Biomedical Research Institute (IDIBGI), Girona, Spain.
Carme Bertran-NoguerNursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain.
Lluís Ramió-TorrentàNeurodegeneration and Neuroinflammation Research Group, Girona; Biomedical Research Institute (IDIBGI), Girona, Spain.
Edurne Zabaleta-Del-OlmoNursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain ezabaleta@idiapjgol.org.ORCID 0000-0002-5072-8548

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionDisease-related knowledge is a key component of shared decision making and a relevant outcome to measure the effectiveness of information provision interventions. However, no systematic psychometric reviews have been found that assess the measurement instruments aimed at evaluating the disease-related knowledge of people affected by multiple sclerosis. This review aims to systematically assess the quality of the measurement properties of all available disease-related knowledge measurement instruments of people affected by multiple sclerosis. METHODS AND ANALYSIS: A systematic psychometric review will be carried out in accordance with the guidelines proposed by the international 'COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN)' initiative. Studies that meet the following criteria will be selected: (1) those whose aim is to measure disease-related knowledge, (2) those whose study populations are affected by multiple sclerosis and (3) those whose aims are to develop measurement instruments or evaluate one or more of their measurement properties. The information sources will be MEDLINE (via PubMed), CINAHL, PsycINFO and OpenGrey. The methodological quality will be assessed using the 'COSMIN Risk of Bias' checklist. Available evidence will be synthesised and graded using a modified Grading of Recommendations Assessment, Development and Evaluation approach. ETHICS AND DISSEMINATION: As this is a systematic review, no ethics approval is needed. Study findings will be shared with multiple sclerosis patient support groups and in reports to funders. The results will be submitted to a peer-reviewed journal and will be presented at national and international conferences. PROSPERO REGISTRATION NUMBER: CRD42019125417.

Indexed as

Multiple SclerosisBiasChecklistConsensusHumansPsychometricsSystematic Reviews as Topicadult neurologymultiple sclerosisquality in health care

Identifiers

PMID34610936
PMCPMC8493926

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.