ArticleJMIR aging2021
Evaluation of Family Caregivers' Use of Their Adult Care Recipient's Patient Portal From the 2019 Health Information National Trends Survey: Secondary Analysis.
Article in JMIR aging, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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The trial behind it
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Who cites it
7 citing papers in PubMed, 10 citations in OpenAlex.
- Digital Health Engagement Behaviors in US Family Caregivers: Trend Analysis Using the Health Information National Trends Survey 2019-2022 Data.Journal of medical Internet research · 2026Article
- Advancing cancer care through digital access in the USA: a state-of-the-art review of patient portals in oncology.BMJ oncology · 2025Review
- Disparities in Patient Portal Use Among Adults With Chronic Conditions.JAMA network open · 2024Article
- Use of provider-sponsored patient portals among older adults and their family caregivers.Journal of the American Geriatrics Society · 2023Article
- Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations: A Scoping Review.JAMA network open · 2022Article
- Physicians' Perspectives on Inpatient Portals: Systematic Review.Interactive journal of medical research · 2022Review
- Utilization of EHR to Improve Support Person Engagement in Health Care for Patients With Chronic Conditions.Journal of patient experience · 2022Article
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient engagement is critical for realizing the value of telehealth modalities such as the patient portal. Family caregiver engagement may also be critical for facilitating the use of the patient portal among adult patients, including older adults.
objectiveThis study aims to analyze the 2019 Health Information National Trends Survey to characterize family caregivers' use of their care recipient's patient portal in terms of sociodemographic, health, and caregiving characteristics and caregivers' use of their own portal.
methodsWe conducted a secondary analysis of cross-sectional data from the National Cancer Institute's Health Information National Trends Survey 5 Cycle 3. This survey was administered to 5438 US adults between January and May 2019. We analyzed data from 320 respondents who were identified as family caregivers. We created measures to reflect family caregivers' use of their care recipient's and their own portal, caregiver demographic and caregiving characteristics, and care recipient health characteristics.
resultsOver half of the caregivers (179/320, 55.9%) reported using their own portal at least once, whereas only one-third (105/320, 32.8%) reported using their care recipient's record in the previous 12 months. Caregivers using their own portal were significantly more likely to use their care recipient's portal (odds ratio 11.18; P<.001).
conclusionsPolicies should enable patients to designate family caregivers who can access their patient portal. Providers could screen caregivers for challenges in their caregiving responsibilities that may be addressed through the portal so they can better support their adult relatives. Interventions to support family caregivers, especially older caregivers, in using their own portal may facilitate their use of their care recipient's portal.
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