ReviewFrontiers in neurology2021
Navigating the Pathway to Care in Adults With Cerebral Palsy.
Review in Frontiers in neurology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Exploring the Characteristics and Utilization of General Practice Healthcare by Adults With Cerebral Palsy: A Systematic Review.Journal of primary care & community healthPooled it
- Rehabilitation for children with cerebral palsy in a lower-middle income country: A qualitative phenomenological study.Developmental medicine and child neurology · 2026Article
- Retrospective analysis of temporalis muscle thickness as a biomarker of functional level in adults with cerebral palsy.Journal of pediatric rehabilitation medicine · 2026Article
- Health-related outcomes among adults with cerebral palsy: a scoping review.BMC neurology · 2026Article
- Longitudinal assessment of the upper limb in adults with cerebral palsy.Developmental medicine and child neurology · 2026Article
- Evolving rehabilitation needs across the lifespan: a mixed methods study with adults with cerebral palsy.Disability and rehabilitation · 2026Article
- Rehabilitation needs and healthcare utilization of adults with cerebral palsy: A mixed methods study.Journal of pediatric rehabilitation medicine · 2025Article
- Medication and Therapy Profiles for Pain and Symptom Management Among Adults With Cerebral Palsy.Mayo Clinic proceedings. Innovations, quality & outcomes · 2025Article
- Transitioning health care for adults with cerebral palsy.Developmental medicine and child neurology · 2025Article
- Prediction Models for Risk of Cardiorespiratory Morbidity/Mortality and Fracture Among Young Adults With Cerebral Palsy.Journal of cachexia, sarcopenia and muscle · 2025Article
- Exploring the Link Between Motor Functions and the Relative Use of the More Affected Arm in Adults with Cerebral Palsy.Sensors (Basel, Switzerland) · 2025Article
- Article
- Neglect of Psychological Care for Children with Cerebral Palsy and Their Families and Its Impact on Their Occupational Engagement in Saudi Arabia.Medicina (Kaunas, Lithuania) · 2024Article
- A Cross-Sectional Study of Disparities in Healthcare Transition in Cerebral Palsy.Journal of clinical medicine · 2024Article
- Comorbidity Clusters Among Adults With Cerebral Palsy: A Latent Class Analysis.American journal of preventive medicine · 2024Article
- Navigating the complex care landscape: Addressing challenges and advancing adult care frameworks for individuals with cerebral palsy.Health care transitions · 2024Article
- Adults with Cerebral Palsy: Navigating the Complexities of Aging.Brain sciences · 2023Review
- Underlying Causes of Death among Adults with Cerebral Palsy.Journal of clinical medicine · 2022Article
- Post-Fracture Inpatient and Outpatient Physical/Occupational Therapy and Its Association with Survival among Adults with Cerebral Palsy.Journal of clinical medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
As individuals with cerebral palsy (CP) age, they face unique challenges which complicate their ability to access and receive appropriate health care. These problems exist at the level of the health care system, the clinician, and the individual. At the system level, there is an inadequate number of professionals who are informed of and interested in the care of adults with CP. Pediatric clinicians prefer treating children, and adult caregivers are not knowledgeable about and may feel less competent about CP. Pediatric care does not translate well to the adult population, and information about best practices for adults is just starting to develop. Differences in the physiologic development of individuals with CP render well-established clinical protocols for risk screening of chronic diseases less effective. Moreover, lack of supportive resources decreases a caregiver's sense of self-efficacy in treating this population. The patient's ability to navigate these barriers is complicated by the high prevalence of comorbid cognitive impairment and mental health issues including anxiety, depression, and other psychiatric disorders; a bidirectional relationship between challenges in navigating care/needs and comorbid mental health conditions appears likely. Many patients have additional barriers related to social determinants of health, such as access to transportation, accessible health care facilities, and other personal and environmental factors that may impede health maintenance and wellness. Increasing and disseminating knowledge, harnessing the power of new technologies such as telemedicine, and addressing mental health issues are some of the methods that are available to help adults with CP navigate this road.
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Registered trials
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