Evidence map›Paper›PMID 34599672›Full record

ArticleInternational urogynecology journal2022

How do women with interstitial cystitis/bladder pain syndrome make treatment choices?

Daisy Hassani, Lorraine Flick, Hareena Sangha, Lily A Brown, Uduak Andy, Lily Arya

Registry-linked trialOpen access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in International urogynecology journal, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05260112 (Implementation of a Text Message and Multimedia-based Program for Women Newly Diagnosed With Interstitial Cystitis/Bladder Pain Syndrome), which is not on this map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
1.3field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05260112 nacompletednot on this map

Implementation of a Text Message and Multimedia-based Program for Women Newly Diagnosed With Interstitial Cystitis/Bladder Pain Syndrome

TypeinterventionalSponsorUniversity of PennsylvaniaRan2021 to 2023Enrolled52ConditionsCystitis, InterstitialArmsERICA
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 10 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Daisy HassaniDivision of Urogynecology and Pelvic Reconstructive Surgery, University of Pennsylvania, Philadelphia, PA, USA. daisy.hassani@pennmedicine.upenn.edu.ORCID http://orcid.org/0000-0002-2186-775X
Lorraine FlickDivision of Urogynecology and Pelvic Reconstructive Surgery, University of Pennsylvania, Philadelphia, PA, USA.
Hareena SanghaUniversity of Pennsylvania, Philadelphia, PA, USA.
Lily A BrownUniversity of Pennsylvania, Philadelphia, PA, USA.
Uduak Andy *Division of Urogynecology and Pelvic Reconstructive Surgery, University of Pennsylvania, Philadelphia, PA, USA.
Lily Arya *Division of Urogynecology and Pelvic Reconstructive Surgery, University of Pennsylvania, Philadelphia, PA, USA.
University of Pennsylvania · USInstitute for Female Pelvic Medicine and Reconstructive Surgery · US

Funding

Diet and fecal incontinence in older womenR03AG053277 · NIA · UNIVERSITY OF PENNSYLVANIA · PI ANDY, UDUAK UMOH · 2016 to 2017
$242k
NIA NIH HHS R03 AG053277NIH HHS R03-AG-053277-02
6 · The paper itself

Abstract

introduction and hypothesisThere is a relative lack of data regarding how patients weigh various factors when choosing a treatment strategy for interstitial cystitis/bladder pain syndrome (IC/BPS). Our aim is to describe patient experience with their current and prior treatments and discuss factors they consider when choosing a treatment.

methodsTwenty-one women with IC/BPS participated in five focus groups moderated by a psychologist. Focus groups were conducted until thematic saturation was reached. Group discussions were transcribed and independently coded by two reviewers. Emergent themes and concepts were identified using grounded theory methodology. Data on symptoms and beliefs regarding medications were collected using validated questionnaires: Interstitial Cystitis Symptom and Problem Index (ICSI and ICPI) and Beliefs in Medications Questionnaire-Specific (BMQ-S).

resultsThe median age of participants was 42 years, and all had some college education. Median score (range) for the ICSI was 12 (4, 20) and for the ICPI was 10 (3, 16), indicating moderate symptom burden. Most patients had tried only first- or second-line treatments. The median BMQ-S score was 2, indicating a neutral attitude toward medication. Several themes were identified. Patients expressed interest in self-management of symptoms using a structured care plan that incorporates guided self-care practices and care that can be delivered virtually. Patients desired to minimize treatment side effects by reducing prescription medications and avoiding surgical procedures. Finally, patients had considerable interest in alternative treatments; however, they wanted these treatments to be evidence-based.

conclusionsWomen with IC/BPS have a strong interest in guided programs that teach self-care practices and deliver alternative treatments through remote platforms.

Indexed as

Cystitis, InterstitialAdultFemaleFocus GroupsHumansSurveys and QuestionnairesAlternative treatmentsBladder pain syndromeFocus groupInterstitial cystitisQualitativeSelf-management

Identifiers

PMID34599672
PMCPMC8486964
OpenAlexW3202214538

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.