ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Patients as team members: Factors affecting involvement in treatment decisions from the perspective of patients with a chronic condition.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
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Who cites it
21 citing papers in PubMed.
- Application of Q-methodology in chronic disease research: a scoping review.BMC medical research methodology · 2026Article
- Patient Participation in Decision-Making During Nursing Care: A Relational Autonomy Perspective.Journal of advanced nursing · 2026Article
- Knowledge and attitudes toward cesarean scar pregnancy among post-cesarean section women.Frontiers in public health · 2026Article
- Shared decision-making in primary care: barriers and facilitators from the physician's and patient's perspectives: a scoping review.Archives of medical science : AMS · 2026Article
- Qualitative study of Black and Latino (a/e) caregiver participation on family-centered rounds.Patient education and counseling · 2025Article
- Tailoring remote patient management to optimise cardiovascular risk management in primary care: a mixed-methods implementation study informing large-scale implementation.BMC primary care · 2025Article
- Evaluating the Impact of Community-Based Medical Education on Health Literacy and Patient Empowerment in Underserved Populations: A Pilot Cohort Study.Clinics and practice · 2025Article
- Diversity of Chemsex Experiences among Men Who Have Sex with Men: Results from the French ANRS PaacX Study Using Q-Methodology.Archives of sexual behavior · 2025Article
- How patients experience nurse-doctor collaborative care at specialist clinics: A qualitative study.PloS one · 2025Article
- Steroidal Mineralocorticoid Receptor Antagonist Side Effects and Reasons for Discontinuation: A Patient Survey (RELICS-PS).Pragmatic and observational research · 2025Article
- Identification and prioritization of patient-centred strategies to enhance IBD-related care for older adults: a modified Delphi approach.Journal of the Canadian Association of Gastroenterology · 2024Article
- Assessing Risk Literacy Skills: Enhancing Healthcare Management among University Students.Healthcare (Basel, Switzerland) · 2024Article
- Behavioral sciences applied to acute care teams: a research agenda for the years ahead by a European research network.BMC health services research · 2024Article
- Knowledge, Attitudes and Practices Towards Psoriasis Among Patients and Their Family Members.Clinical, cosmetic and investigational dermatology · 2024Article
- Patient engagement in radiation oncology: a large retrospective study of survey response dynamics.Frontiers in oncology · 2024Article
- Enhancing early functional independence following cardiac surgery: a quality improvement programme.BMJ open quality · 2023Article
- Article
- Delivering Prognostic News to Older People with Chronic Disease: What Format Preference and Level of Involvement in Decision Making? A Hospital Survey.Healthcare (Basel, Switzerland) · 2023Article
- Perspective: Industry-patient relationships for the promotion of pharmaceutical agents.Therapeutic advances in neurological disorders · 2023Article
- Views of healthcare consumer representatives on defensive practice: 'We are your biggest advocate and supporter… not the enemy'.Health expectations : an international journal of public participation in health care and health policy · 2022Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundActive patient involvement in treatment decisions is seen as a feature of patient-centred care that will ultimately lead to better healthcare services and patient outcomes. Although many factors have been identified that influence patient involvement in treatment decisions, little is known about the different views that patients have on which factors are most important.
objectiveThis study explores the views of patients with a chronic condition on factors influencing their involvement in treatment decisions.
designQ-methodology was used to study the views of patients. Respondents were asked to rank a set of 42 statements from the least important to the most important for active patient involvement in treatment decision-making. The set of 42 statements was developed based on a literature search and a pilot in which two external researchers, 15 patients and four healthcare professionals participated. A total of 136 patients with one of three major chronic conditions were included: diabetes types 1 and 2, respiratory disease (i.e., chronic obstructive pulmonary disease and asthma) and cancer (i.e., breast cancer and prostate cancer). Data were collected in a face-to-face interview setting in the Netherlands.
resultsFour distinct views on the factors influencing active patient involvement were identified among patients with a chronic condition. (1) Enabled involvement: the extent to which patients are facilitated and empowered to participate will lead to patient involvement. (2) Relationship-driven involvement: the relationship between patients and healthcare professionals drives patient involvement. (3) Disease impact-driven involvement: the severity of disease drives patient involvement. (4) Cognition-driven involvement: knowledge and information drive patient involvement. DISCUSSION AND
conclusionFrom the patients' perspective, this study shows that there is no one-size-fits-all approach to involving patients more actively in their healthcare journey. Strategies aiming to enhance active patient involvement among patients with a chronic condition should consider this diversity in perspectives among these patients. PATIENT CONTRIBUTION: Patients are the respondents as this study researches their perspective on factors influencing patient involvement. In addition, patients were involved in pilot-testing the statement set.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.