ArticleBMJ open2021
'We have been in lockdown since he was born': a mixed methods exploration of the experiences of families caring for children with intellectual disability during the COVID-19 pandemic in the UK.
Article in BMJ open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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Who cites it
11 citing papers in PubMed.
- Experiences of typically developing siblings of children with profound intellectual and multiple disabilities during the COVID-19 pandemic in Poland.International journal of developmental disabilities · 2026Article
- Families of Children/Youth with Complex Needs Before, During, and After COVID-19 Pandemic Restrictions.Journal of child & adolescent trauma · 2025Article
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- Experiences of people with intellectual disabilities during the COVID-19 pandemic. A thematic synthesis.International journal of developmental disabilities · 2024Article
- An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review.Annals of medicine · 2023Article
- Care and rehabilitation institutions for people with intellectual disabilities during the COVID-19 pandemic: Polish experiences.International social work · 2023Article
- Experiences of parents of children with rare neurogenetic conditions during the COVID-19 pandemic: an interpretative phenomenological analysis.BMC psychology · 2023Article
- Who cares about the carers? A call to action on behalf of mothers of disabled children.Frontiers in sociology · 2023Article
- Parents voice their experiences of caring for children with special healthcare needs amid the COVID-19 pandemic.Journal of pediatric nursingArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectivesThis study aimed to explore the experiences of parents caring for children with intellectual and developmental disabilities (IDD) during the UK national lockdown in spring 2020, resulting from the COVID-19 pandemic.
designParticipants were identified using opportunity sampling from the IMAGINE-ID national (UK) cohort and completed an online survey followed by a semistructured interview. Interviews were analysed using thematic analysis.
settingInterviews were conducted over the telephone in July 2020 as the first UK lockdown was ending.
participants23 mothers of children with intellectual and developmental disabilities aged 5-15 years were recruited.
resultsThemes reported by parents included: managing pre-existing challenges during a time of extreme change, having mixed emotions about the benefits and difficulties that arose during the lockdown and the need for appropriate, individualised support.
conclusionsOur findings confirm observations previously found in UK parents of children with IDD and provide new insights on the use of technology during the pandemic for schooling and healthcare, as well as the need for regular check-ins.
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