Evidence map›Paper›PMID 34589047›Full record

ArticleFrontiers in neurology2021

Study Protocol for the Development of a European eHealth Platform to Improve Quality of Life in Individuals With Huntington's Disease and Their Partners (HD-eHelp Study): A User-Centered Design Approach.

Pearl J C van Lonkhuizen, Niko J H Vegt, Eline Meijer, Erik van Duijn, Susanne T de Bot, Jiří Klempíř, Wiebke Frank, G Bernhard Landwehrmeyer, Alzbeta Mühlbäck, Jennifer Hoblyn and 4 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Frontiers in neurology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
  4. The validation of the Italian version of multiple sclerosis neuropsychological screening questionnaire in Huntington's disease.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2023
    Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Pearl J C van LonkhuizenDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands.
Niko J H VegtDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands.
Eline MeijerDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands.
Erik van DuijnHuntington Center Topaz Overduin, Katwijk, Netherlands.
Susanne T de BotDepartment of Neurology, Leiden University Medical Center, Leiden, Netherlands.
Jiří KlempířDepartment of Neurology and Center of Clinical Neuroscience, 1st Faculty of Medicine, Charles University and General University Hospital in Prague, Prague, Czechia.
Wiebke FrankDepartment of Neurology, University Hospital Ulm, Ulm, Germany.
G Bernhard LandwehrmeyerDepartment of Neurology, University Hospital Ulm, Ulm, Germany.
Alzbeta MühlbäckDepartment of Neurology, University Hospital Ulm, Ulm, Germany.
Jennifer HoblynBloomfield Hospital, Trinity College Dublin, Dublin, Ireland.
Ferdinando SquitieriHuntington and Rare Diseases Unit, Fondazione Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS) Casa Sollievo della Sofferenza Research Hospital, San Giovanni Rotondo, Italy.
Peter FoleyDepartment of Clinical Neurosciences, Anne Rowling Regenerative Neurology Clinic, University of Edinburgh, Edinburgh, United Kingdom.
Niels H ChavannesDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands.
Anne-Wil HeemskerkDepartment of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

eHealthHuntington diseaseneurodegenerative diseasesquality of lifestudy protocoltelemedicinetele-neurologyuser-centered design

Identifiers

PMID34589047
PMCPMC8476232

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.