ArticleAmerican Indian and Alaska native mental health research (Online)2021
Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.
Article in American Indian and Alaska native mental health research (Online), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- "…what it all comes down to is being a good relative": urban indigenous perspectives on caregiving, community, and culture to inform trauma transmission prevention and generational healing.Journal of behavioral medicine · 2026Article
- Heightened risk of fatal police violence in and around reservations for American Indian/Alaska Native peoples in the United States.Proceedings of the National Academy of Sciences of the United States of America · 2026Article
- Health technology design considerations specific to Indigenous Data Sovereignty and implementation science.Frontiers in health services · 2026Article
- Culturally Engaged REcovery - MOms connected through Native CommunitY (CEREMONY): An Implementation Study to Evaluate the Adaptation and Implementation of an Integrated Perinatal SUD Clinical Model for Pregnant and Postpartum Native People.Substance use & addiction journal · 2026Article
- A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction.Frontiers in genetics · 2026Article
- A systematic review of responsible stewardship of research and health data from Indigenous communities.NPJ digital medicine · 2025Article
- Displaced People, Misplaced Care: Plight of Cancer Care in American Indian and Alaskan Native Populations.Annals of surgical oncology · 2025Article
- Indigenous Cultural Identity Protects Against Intergenerational Transmission of ACEs Among Indigenous Caregivers and Their Children.Journal of racial and ethnic health disparities · 2024Article
- Ethical publishing in 'Indigenous' contexts.Tobacco control · 2024Article
- Increased community engagement of Indigenous Peoples in dementia research leads to higher context relevance of results.Dementia (London, England) · 2024Review
- Article
- Lessons learned and future directions: A scoping review of American Indian and Alaska Native participants in the National Drug Abuse Treatment Clinical Trials Network.Journal of substance use and addiction treatment · 2023Article
- Rates and Correlates of Intimate Partner Abuse Among Indigenous Women Caregivers.Journal of interpersonal violence · 2023Article
- Risk and Resilience Among Families in Urban AI/AN Communities: the Role of Young Adults.Journal of racial and ethnic health disparities · 2023Article
- Using Indigenous Standards to Implement the CARE Principles: Setting Expectations through Tribal Research Codes.Frontiers in genetics · 2022Article
- Virtual Research with Urban Native Young Women: Cautionary Tales in the Time of a Pandemic.Progress in community health partnerships : research, education, and action · 2022Article
- Indigenous knowledge and sugar sweetened beverages: Qualitative adaptations towards chronic disease prevention and intervention.Explore (New York, N.Y.)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
This paper examines the ethical issues underlying research with urban American Indians and Alaska Natives (AI/ANs) through the lens of tribal sovereignty. There are 574 federally recognized tribes within the United States. Each of those tribes is recognized by the federal government as having sovereign status, an important political designation that ensures that decisions impacting tribal peoples must be made after consultation with those nations. Most AI/AN people live away from their designated tribal lands, yet their sovereign rights are frequently only recognized when living on tribal lands. These urban AI/ANs are still considered citizens of their sovereign nations, yet they lack the protections afforded to those who live on tribal lands, including protections surrounding research with their tribal communities. We explore the Belmont Report and related documents and demonstrate their inadequacy in considering the cultural and ethical concerns specific to protecting urban AI/ANs. We also provide several solutions to help guide future institutional policies regarding research with urban AI/ANs that honors Indigenous data sovereignty, including consultation, partnership with community advisory boards, employment of data use agreements, and ensuring informed consent.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.