Evidence map›Paper›PMID 34585085›Full record

ArticleMayo Clinic proceedings. Innovations, quality & outcomes2021

Patients' Perspective About the Cost of Diabetes Management: An Analysis of Online Health Communities.

Catherine C Gao, Nataly R Espinoza Suarez, Freddy J K Toloza, Ariana S Malaga Zuniga, Sarah R McCarthy, Kasey R Boehmer, Lixia Yao, Sunyang Fu, Juan P Brito

Abstract read
In one paragraph

Article in Mayo Clinic proceedings. Innovations, quality & outcomes, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. A Systematic Approach to Treating Early Metabolic Disease and Prediabetes.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2023
    Article
  5. Review
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Catherine C GaoMayo Clinic Alix School of Medicine.
Nataly R Espinoza SuarezKnowledge and Evaluation Research Unit, Mayo Clinic, Rochester, MN.
Freddy J K TolozaKnowledge and Evaluation Research Unit, Mayo Clinic, Rochester, MN.
Ariana S Malaga ZunigaKnowledge and Evaluation Research Unit, Mayo Clinic, Rochester, MN.
Sarah R McCarthyKnowledge and Evaluation Research Unit, Mayo Clinic, Rochester, MN.
Kasey R BoehmerKnowledge and Evaluation Research Unit, Mayo Clinic, Rochester, MN.
Lixia YaoDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Sunyang FuDepartment of Health Sciences Research, Mayo Clinic, Rochester, MN.
Juan P BritoKnowledge and Evaluation Research Unit, Mayo Clinic, Rochester, MN.

Funding

NCATS NIH HHS L30 TR002972
6 · The paper itself

Abstract

objectiveTo understand the perspectives of persons' living with diabetes about the increasing cost of diabetes management through an analysis of online health communities (OHCs) and the impact of persons' participation in OHCs on their capacity and treatment burden. PATIENTS AND

methodsA qualitative study of 556 blog posts submitted between January 1, 2007 and December 31, 2017 to 4 diabetes social networking sites was conducted between March 2018 and July 2019. All posts were coded inductively using thematic analysis procedures. Eton's Burden of Treatment Framework and Boehmer's Theory of Patient Capacity directed triangulation of themes with existing theory.

resultsThree themes were identified: (1) cost barriers to care: participants describe individual and systemic cost barriers that inhibit prescribed therapy goals; (2) impact of financial cost on health: participants describe the financial effects of care on their physical and emotional health; and (3) saving strategies to overcome cost impact: participants discuss practical strategies that help them achieve therapy goals. Finally, we also identify that the use of OHCs serves to increase persons' capacity with the potential to decrease treatment burden, ultimately improving mental and physical health.

conclusionHigh cost for diabetes care generated barriers that negatively affected physical health and emotional states. Participant-shared experiences in OHCs increased participants' capacity to manage the burden. Potential solutions include cost-based shared decision-making tools and advocacy for policy change.

Indexed as

BoTF, Burden of Treatment FrameworkBS, blood sugarDME, Durable Medical EquipmentHMO, health maintenance organizationIDDM, insulin-dependent diabetes mellitusIRB, institutional review boardOHC, online health communityPLWD, person living with diabetesPPA, Partnership for Prescription AssistanceRX, prescriptionT1D, type 1 diabetesTPC, Theory of Patient Capacity

Identifiers

PMID34585085
PMCPMC8455864

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.