Evidence map›Paper›PMID 34580327›Full record

Observational studyScientific reports2021

A best-worst scaling experiment to prioritize concern about ethical issues in citizen science reveals heterogeneity on people-level v. data-level issues.

Christi J Guerrini, Norah L Crossnohere, Lisa Rasmussen, John F P Bridges

Open access · goldAbstract readObservational Study
In one paragraph

Observational study in Scientific reports, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
2.4field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 15 citations in OpenAlex.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Assessing patient information needs for new antidiabetic medications to inform shared decision-making: A best-worst scaling experiment in China.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  6. Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Christi J GuerriniCenter for Medical Ethics and Health Policy, Baylor College of Medicine, 1 Baylor Plaza, Houston, TX, 77030, USA. guerrini@bcm.edu.
Norah L CrossnohereDepartment of Biomedical Informatics, The Ohio State University College of Medicine, 220N Lincoln Tower, 1800 Cannon Drive, Columbus, OH, 43210, USA.
Lisa RasmussenDepartment of Philosophy, The University of North Carolina Charlotte, 9201 University City Blvd., Charlotte, NC, 28223, USA.
John F P BridgesDepartment of Biomedical Informatics, The Ohio State University College of Medicine, 220N Lincoln Tower, 1800 Cannon Drive, Columbus, OH, 43210, USA.
The Ohio State University · USBaylor College of Medicine · USUniversity of North Carolina at Charlotte · US

Funding

Ownership Interests in Research Outputs of Genomic Citizen Science InitiativesK01HG009355 · NHGRI · BAYLOR COLLEGE OF MEDICINE · PI GUERRINI, CHRISTI · 2016 to 2019
$664k
NHGRI NIH HHS K01 HG009355
6 · The paper itself

Abstract

"Citizen science" refers to the participation of lay individuals in scientific studies and other activities having scientific objectives. Citizen science gives rise to unique ethical issues that stem from the potentially multifaceted contributions of citizen scientists to the research process. We sought to explore the ethical issues that are most concerning to citizen scientist practitioners, participants, and scholars to support ethical practices in citizen science. We developed a best-worst scaling experiment using a balanced incomplete block design and fielded it with respondents recruited through the U.S.-based Citizen Science Association. Respondents were shown repeated subsets of 11 ethical issues and identified the most and least concerning issues in each subset. Latent class analysis revealed two respondent classes. The "Power to the People" class was most concerned about power imbalance between project leaders and participants, exploitation of participants, and lack of diverse participation. The "Show Me the Data" class was most concerned about the quality of data generated by citizen science projects and failure of projects to share data and other research outputs.

Indexed as

Data AccuracyResearch DesignAdolescentAdultCitizen ScienceFemaleHumansMaleMiddle AgedPilot ProjectsQualitative ResearchSurveys and QuestionnairesYoung Adult

Identifiers

PMID34580327
PMCPMC8476613
OpenAlexW3204402541

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.