Evidence map›Paper›PMID 34579521›Full record

ArticleJournal of public health research2021

Informal caregivers and psychosocial support: Analysis of European Dementia Policy documents.

Miroslava Tokovska, Magde Mohamed Nour, Anette Sørensen, Ursula Småland Goth

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in Journal of public health research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06722976 (Digital HEAL), which is not on this map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
2.4field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06722976 naenrolling by invitationnot on this mapstarted 2024, after this paper: background citation

Digital HEAL (Health and Exercise for Autonomous Longevity)

TypeinterventionalSponsorUniversity of Beira InteriorRan2024 to 2025Enrolled120ConditionsMild Cognitive Impairment (MCI), Older PeopleArmsMulticomponent exercise programs
3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 25 citations in OpenAlex.

  1. Article
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  7. Article
  8. The Saskatchewan Caregiver Experience Study: Support Priorities of Caregivers of Older Adults.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

Miroslava TokovskaSchool of Health Science, Kristiania University College, Oslo. miroslava.tokovska@kristiania.no.
Magde Mohamed NourSchool of Health Science, Kristiania University College, Oslo; Department of Information Science and Media Studies, University of Bergen, Bergen. magdemohamed.nour@kristiania.no.
Anette SørensenSchool of Health Science, Kristiania University College, Oslo. anette.sorensen@kristiania.no.
Ursula Småland GothSchool of Health Science, Kristiania University College, Oslo. usrulasmaland.goth@kristiania.no.
Høyskolen Kristiania · NOUniversity of Bergen · NO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Various countries in Europe have different strategies for promoting care solutions for dementia challenges. The different approaches of Austria, Belgium, Czechia, Denmark, Finland, Germany, Gibraltar, Ireland, Israel, Malta, Nederland, Norway, Sweden and the United Kingdom (Scotland and Wales) were investigated. Dementia has a significant social, psychological and economic impact on the individual, family and society.  As the disease progresses dementia sufferers become increasingly dependent. As many dementia sufferers are at home during the initial stages, the physical, emotional, and social demands of the dementia sufferers are often covered by informal caregivers. This study, therefore, aims to investigate the integration of psychosocial interventions for comprehensive care pertaining to informal caregivers of people with dementia in Europe. Furthermore, the study will highlight how implementation of technologies might enable psychosocial support of informal caregivers. The data is based on 15 national dementia strategies from various European countries. Data was based on preexisting coding systems with the predefined keywords and analyzed by qualitative content analysis by four of the authors. Our results show that psychosocial support is provided in various modalities and that informal caregivers need to be supported by a psychosocial approach. Due to this need the national dementia strategies should include measures to reduce the emotional burden of informal caregivers. Psychosocial support provided to informal caregivers in a comprehensive and systematic way is likely to enable informal caregivers to handle the emotional, cognitive, and behavioral consequences of the disease and its treatment, while helping to maintain their work-life balance.

Identifiers

PMID34579521
PMCPMC8874860
OpenAlexW3203812208

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.