ArticleJournal of public health research2021
Informal caregivers and psychosocial support: Analysis of European Dementia Policy documents.
Article in Journal of public health research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06722976 (Digital HEAL), which is not on this map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Digital HEAL (Health and Exercise for Autonomous Longevity)
Who cites it
13 citing papers in PubMed, 25 citations in OpenAlex.
- Supporting Family Caregivers' Clinical Communication Skills: Adapting a Cancer Caregiver Communication Model for Dementia Caregiving.International journal of environmental research and public health · 2026Article
- Policies for supporting caregivers of older adults with long-term care needs in EU countries: a systematic review.European journal of ageing · 2026Review
- Living well with dementia: a qualitative interview study on family caregivers' call for more person- and family-centered dementia support.BMC geriatrics · 2025Article
- Suffering and loss in Lewy body dementia: Applying a palliative care lens to a longitudinal narrative study.Palliative & supportive care · 2025Article
- The Impact of Caregiving on Informal Caregivers of People with Dementia: Family Functioning, Burden, and Burnout.Journal of clinical psychology in medical settings · 2025Article
- Informal Caregivers in Transitional Hospital-to-Home Care for Older People: Addressing Gaps in Pre-Discharge Collaboration for Enhanced Patient Outcomes.Patient preference and adherence · 2025Article
- Perspectives on Technology Use in the Context of Caregiving for Persons With Dementia: Qualitative Interview Study.JMIR formative research · 2024Article
- The Saskatchewan Caregiver Experience Study: Support Priorities of Caregivers of Older Adults.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024Article
- Perceived Importance of Types and Characteristics of Support to Informal Caregivers among Spouse Caregivers of Persons with Dementia in Sweden: A Cross-Sectional Questionnaire-Based Study.International journal of environmental research and public health · 2024Article
- Physical Activity Mobile App (CareFit) for Informal Carers of People With Dementia: Protocol for a Feasibility and Adaptation Study.JMIR research protocols · 2024Article
- Peer Support Workers as an Innovative Force in Advocacy in Dementia Care: A Transnational Project Delivered in Norway, Greece, Italy, and Romania.Journal of multidisciplinary healthcare · 2024Article
- Self-Help Groups within Nursing Homes: The Experiences of Family Caregivers in Northeastern Italy.Behavioral sciences (Basel, Switzerland) · 2023Article
- Effectiveness of home care intervention on family ability to do caregiving at home and increase the independence among elderly with dementia.Journal of public health research · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Various countries in Europe have different strategies for promoting care solutions for dementia challenges. The different approaches of Austria, Belgium, Czechia, Denmark, Finland, Germany, Gibraltar, Ireland, Israel, Malta, Nederland, Norway, Sweden and the United Kingdom (Scotland and Wales) were investigated. Dementia has a significant social, psychological and economic impact on the individual, family and society. As the disease progresses dementia sufferers become increasingly dependent. As many dementia sufferers are at home during the initial stages, the physical, emotional, and social demands of the dementia sufferers are often covered by informal caregivers. This study, therefore, aims to investigate the integration of psychosocial interventions for comprehensive care pertaining to informal caregivers of people with dementia in Europe. Furthermore, the study will highlight how implementation of technologies might enable psychosocial support of informal caregivers. The data is based on 15 national dementia strategies from various European countries. Data was based on preexisting coding systems with the predefined keywords and analyzed by qualitative content analysis by four of the authors. Our results show that psychosocial support is provided in various modalities and that informal caregivers need to be supported by a psychosocial approach. Due to this need the national dementia strategies should include measures to reduce the emotional burden of informal caregivers. Psychosocial support provided to informal caregivers in a comprehensive and systematic way is likely to enable informal caregivers to handle the emotional, cognitive, and behavioral consequences of the disease and its treatment, while helping to maintain their work-life balance.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.