ArticlePediatric surgery international2022
Considering the value of online support groups for colorectal conditions: perspectives from caregivers and adult patients.
Article in Pediatric surgery international, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
8 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Anorectal malformation in adulthood: a systematic review of biological, psychological, and sociological outcomes and experiences.Pediatric surgery international · 2026Pooled it
- Life outcomes of being born with anorectal malformation: a systematic review of intersectional reporting, mental health co-morbidities, and psychosocial experiences in adulthood.Pediatric surgery international · 2026Pooled it
- Applications and Assessment of Social Media in Pediatric Orthopedics: Scoping Review.Journal of medical Internet research · 2025Article
- "Take It One Dilation at a Time": Caregiver Perspectives of Postoperative Anal Dilations in Pediatric Patients with Colorectal Conditions.Behavioral sciences (Basel, Switzerland) · 2024Article
- A Scale for Measuring Electronic Patient Engagement Behaviors: Development and Validation.Patient preference and adherence · 2024Article
- Knowledge, Attitudes and Practices Towards Psoriasis Among Patients and Their Family Members.Clinical, cosmetic and investigational dermatology · 2024Article
- Exploring how members of the public access and use health research and information: a scoping review.BMC public health · 2023Article
- Social media communities for patients and families affected by congenital pediatric surgical conditions.Pediatric surgery international · 2022Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo evaluate the benefits of participating in an online support group for caregivers of children with a colorectal condition or adult patients with a similar condition.
methodsAn electronic survey was administered to members of an international online support group (18 items for caregivers; 15 for patients). Items included demographics, medical diagnosis, potential benefits, and overall experiences in the group. Quantitative results were summarized as descriptive trends, while qualitative responses were summarized thematically.
resultsRespondents (102 caregivers, 6 patients) were primarily female, 35-44 years old, Caucasian, and resided in the United States. Most respondents learned about the support group from medical providers or online search. Cited benefits included learning information, gaining support, forming connections through shared experience, and utilizing a unique resource. Being a member of the group was helpful to respondents, improved their mental health and access to health information, and they would recommend the group to others.
conclusionParticipation in online support groups offers educational and emotional benefits to patients/caregivers which complements the medical support from their colorectal teams. Thus, colorectal providers need to be aware of the availability and potential benefits of these groups, and encourage their patients/caregivers to be actively involved.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.