ArticleDevelopmental medicine and child neurology2022
Inequities in quality and safety outcomes for hospitalized children with intellectual disability.
Article in Developmental medicine and child neurology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 35 citations in OpenAlex.
- The Views and Experiences of Families and Registered Nurses Regarding Hospital Care and Support of Children With Intellectual Disabilities: A Systematic Review.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Co-Producing a Patient Reported Experience Measure (PREM) With and for People With Intellectual Disability.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Facilitating Communication With Children and Young Adults With Special Health Care Needs Through a Web-Based Application: Qualitative Descriptive Study.JMIR pediatrics and parenting · 2026Article
- Disparities in access to health and support services for people with disability in Australia: a scoping review of the structural social determinants.BMC health services research · 2025Article
- Integrating equity into incident reporting and patient concerns systems: a critical interpretive synthesis.BMJ quality & safety · 2025Review
- Co-Producing Patient-Reported Experience Measures With People With Intellectual Disability to Improve Healthcare Quality and Outcomes: The 'Listen to Me' Project Protocol.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Balancing personal and social identities for the care of priority populations in a paediatric hospital setting: a qualitative study.BMC health services research · 2025Article
- Generators of Inequality and Inequity Affecting Dental Patient Safety: A Grounded Theory Approach.International journal of environmental research and public health · 2025Article
- Impact of COVID-19 on Hospital Admissions for Children With Developmental Disadvantages: A Western Sydney Metropolitan Hospital Experience on Health Inequity.Journal of paediatrics and child health · 2025Article
- Providing Enhanced Access to Child Health Services (PEACH) at Sydney Children's Hospital Network: a study protocol.BMJ open · 2025Article
- The experience of nurses caring for children with intellectual disability.Frontiers in psychiatry · 2025Article
- Adults with intellectual disabilities' satisfaction regarding their hospitalization: A correlational descriptive study.Journal of intellectual disabilities : JOID · 2024Article
- What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- "I am not a number!" Opinions and preferences of people with intellectual disability about genetic healthcare.European journal of human genetics : EJHG · 2023Article
- Reported clinical incidents of children with intellectual disability: A qualitative analysis.Developmental medicine and child neurology · 2022Article
- 'Smiles and laughter and all those really great things': Nurses' perceptions of good experiences of care for inpatient children and young people with intellectual disability.Journal of advanced nursing · 2022Article
- Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol.BMJ open · 2021Article
- What Are the Psycho-Social and Information Needs of Adolescents and Young Adults Cancer Care Consumers with Intellectual Disability? A Systematic Review of Evidence with Recommendations for Future Research and Practice.Children (Basel, Switzerland) · 2021Review
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo investigate if there are inequities in quality and safety outcomes for children with intellectual disability admitted to two tertiary paediatric hospitals.
methodA cross-sectional study of 1367 admissions for 1018 randomly selected patients admitted for more than 23 hours to one of two tertiary children's hospitals in Sydney, Australia (1st January-31st December 2017). Electronic medical records were manually interrogated to identify children with intellectual disability (including developmental delay). Data extracted included patient demographics, length of stay, number of admissions, and reported clinical incidents.
resultsIn total, 12.3% (n=125) of children admitted during the study period had intellectual disability, which represented 13.9% (n=190) of admissions. Sex and age at admission in children with and without intellectual disability were similar: 83 (43.7%) vs 507 (43.1%) females and 107 (56.3%) vs 670 (56.9%) males, p=0.875; median age 3 years (0-18y) vs 4 years (0-18y), p=0.122. Children with intellectual disability had significantly greater median length of stay (100.5h vs 79h, p<0.001) and cost of admission (A$11 596.38 vs A$8497.96) than their peers (p=0.001). Children with intellectual disability had more admissions with at least one incident compared to children without intellectual disability (14.7% vs 9.7%); this was not statistically significant (p=0.06).
interpretationChildren with intellectual disability experience inequitable quality and safety outcomes in hospital. Engaging children and families in clinical incident reporting may enhance understanding of safety risks for children with intellectual disability in hospital.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.