ArticleWomen's health issues : official publication of the Jacobs Institute of Women's Health
A Socio-Ecological Approach to Understanding the Perinatal Care Experiences of People with Intellectual and/or Developmental Disabilities in Ontario, Canada.
Article in Women's health issues : official publication of the Jacobs Institute of Women's Health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 3 of them syntheses that pooled it.
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Who cites it
15 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Barriers and Facilitators to Participation in Psychosocial Research for Adults With Intellectual Disabilities: A Systematic Review.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Experiences of women with type 2 diabetes during the pre-pregnancy, pregnancy and postpartum periods: A systematic review of qualitative studies.Diabetic medicine : a journal of the British Diabetic Association · 2025Pooled it
- Pooled it
- Obstetric Care and Pregnancy Health in Autistic Individuals and Those with Other Developmental Disabilities in an Integrated Healthcare Setting in California.Autism in adulthood · 2025Article
- A qualitative meta-synthesis of the perinatal healthcare experiences of people with disability.Disability and health journal · 2025Review
- Pregnancy Experiences of Women With Intellectual and Developmental Disabilities.Intellectual and developmental disabilities · 2025Article
- A Socioecological Framing of the Experiences of Caregivers of Children With Cerebral Palsy in South Africa Post COVID-19.Journal of child neurology · 2025Article
- The Limits and Contributions of Formal Support: Service Providers' Perspectives on Balancing Formal and Natural Support for People with Disabilities and their Families in Canada.Journal of developmental and physical disabilities · 2025Article
- Disability justice and collective access to labour and delivery care: a qualitative study.BMC pregnancy and childbirth · 2024Article
- "They had the lunch lady coming up to assist": The experiences of menarche and menstrual management for adolescents with physical disabilities.Disability and health journal · 2023Article
- Health conditions and service use of autistic women and men: A retrospective population-based case-control study.Autism : the international journal of research and practice · 2023Article
- Clinician-reported barriers to providing perinatal care to women with intellectual and developmental disabilities.Journal of intellectual & developmental disability · 2023Article
- Neonatal Outcomes of Mothers With a Disability.Pediatrics · 2022Article
- Barriers to and facilitators of effective communication in perinatal care: a qualitative study of the experiences of birthing people with sensory, intellectual, and/or developmental disabilities.BMC pregnancy and childbirth · 2022Article
- Improved Obstetric Care for People with Disabilities: An Urgent Call for Accessibility and Inclusion.Journal of women's health (2002) · 2022Article
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Authors and funding
7 authors.
Funding
Abstract
backgroundAccessible and quality care during the perinatal period is critical for optimal maternal and neonatal health. Using the socio-ecological model, the purpose of this study was to explore barriers and facilitators that shape the perinatal care experiences of people with intellectual and/or developmental disabilities (IDD).
methodsSemi-structured interviews were conducted with 10 individuals with IDD in Ontario, Canada, who had given birth within the past 5 years. Interviews focused on care experiences before, during, and after pregnancy. Data were analyzed using a directed content analysis approach, and the socio-ecological model guided analysis.
resultsBarriers at the societal (e.g., cultural norms of motherhood), policy/institutional (e.g., child protection policies and practices), interpersonal (e.g., inadequate formal and informal support), and intrapersonal levels (e.g., internalized stigma) contributed to participants having negative perinatal care experiences. Conversely, we identified facilitators on the interpersonal level (e.g., positive interactions with perinatal care providers and familial and social service supports) as positively shaping participants' perinatal care experiences.
conclusionsFindings reveal that the perinatal care experiences of people with IDD are shaped by several interrelated factors that largely stem from societal-level barriers, such as dominant (stigmatizing) discourses of disability. To improve the perinatal care experiences of people with IDD, there is a need for interventions at multiple levels. These include the development of policies to support perinatal care for diverse populations and training care providers to enact policies at the institutional and interpersonal levels.
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