Evidence map›Paper›PMID 34553489›Full record

ArticleAutism research : official journal of the International Society for Autism Research2021

Rethinking autism spectrum disorder assessment for children during COVID-19 and beyond.

Lonnie Zwaigenbaum, Somer Bishop, Wendy L Stone, Lisa Ibanez, Alycia Halladay, Sylvie Goldman, Amy Kelly, Cheryl Klaiman, Meng-Chuan Lai, Meghan Miller and 5 more

Abstract read
In one paragraph

Article in Autism research : official journal of the International Society for Autism Research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed.

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  7. Limited Effect of Masking During COVID-19 Pandemic on ADOS-2 Algorithm Scores in Toddlers With and Without Autism.Autism research : official journal of the International Society for Autism Research · 2025
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  8. Article
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  12. Time is of the essence: Age at autism diagnosis, sex assigned at birth, and psychopathology.Autism : the international journal of research and practice · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Lonnie ZwaigenbaumDepartment of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.ORCID 0000-0001-9607-0799
Somer BishopDepartment of Psychiatry and Behavioral Sciences, University of California San Francisco, San Francisco, California, USA.
Wendy L StoneDepartment of Psychology, University of Washington, Seattle, Washington, USA.ORCID 0000-0002-8546-7536
Lisa IbanezDepartment of Psychology, University of Washington, Seattle, Washington, USA.ORCID 0000-0002-7084-3375
Alycia HalladayAutism Science Foundation, New York, New York, USA.ORCID 0000-0002-8264-8753
Sylvie GoldmanDepartment of Neurology, G.H. Sergievsky Center, Columbia University Medical Center, New York, New York, USA.ORCID 0000-0002-2575-0209
Amy KellyDevereux Advanced Behavioral Health, Villanova, Pennsylvania, USA.
Cheryl KlaimanDepartment of Pediatrics, Emory School of Medicine, Atlanta, Georgia, USA.ORCID 0000-0002-3198-0609
Meng-Chuan LaiThe Margaret and Wallace McCain Centre for Child, Youth & Family Mental Health and Azrieli Adult Neurodevelopmental Centre, Campbell Family Mental Health Research Institute, Centre for Addiction and Mental Health, Toronto, Ontario, Canada.ORCID 0000-0002-9593-5508
Meghan MillerDepartment of Psychiatry & Behavioral Sciences and MIND Institute, University of California, Davis, California, USA.ORCID 0000-0002-1260-4149
Celine SaulnierDepartment of Pediatrics, Emory School of Medicine, Atlanta, Georgia, USA.ORCID 0000-0001-8091-554X
Paige SiperSeaver Autism Center for Research and Treatment, Icahn School of Medicine at Mount Sinai, New York, New York, USA.ORCID 0000-0002-9659-8232
Kristin SohlDepartment of Child Health, University of Missouri School of Medicine, Columbia, Missouri, USA.ORCID 0000-0003-0588-8742
Zachary WarrenDepartment of Pediatrics, Vanderbilt University Medical Center, Nashville, Tennessee, USA.ORCID 0000-0001-9677-9386
Amy WetherbyDepartment of Clinical Sciences, College of Medicine, Florida State University, Tallahassee, Florida, USA.ORCID 0000-0001-9072-8537

Funding

Autism Genetics, Phase II: Increasing Representation of Human DiversityR01MH100027 · NIMH · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI GESCHWIND, DANIEL H · 2013 to 2024
$31.7M
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at VanderbiltP50HD103537 · NICHD · VANDERBILT UNIVERSITY MEDICAL CENTER · PI Jeffrey L Neul · 2020 to 2026
$10.3M
Autism Adaptive Community-based Treatment to Improve Outcomes using Navigators (ACTION) NetworkR01HD093055 · NICHD · FLORIDA STATE UNIVERSITY · PI WETHERBY, AMY M · 2017 to 2021
$10.2M
An investigation of transdiagnostic mechanisms underlying ASD and ADHD traits among infants at riskR01MH121416 · NIMH · UNIVERSITY OF CALIFORNIA AT DAVIS · PI MILLER, MEGHAN RHYS · 2020 to 2024
$3.9M
Shared and Distinct Developmental Pathways to ADHD and Autism Spectrum DisorderR00MH106642 · NIMH · UNIVERSITY OF CALIFORNIA AT DAVIS · PI MILLER, MEGHAN RHYS · 2017 to 2020
$863k
Autism Science FoundationCanadian Institutes of Health Research Sex and Gender Science Chair GSB 171373Eunice Kennedy Shriver National Institute of Child Health and Human Development R01HD093055NICHD NIH HHS P50 HD103537NICHD NIH HHS R01 HD093055NIMH NIH HHS R00 MH106642NIMH NIH HHS R01 MH100027NIMH NIH HHS R01 MH121416Stollery Children's Hospital FoundationUS National Institutes of Health R00MH10664US National Institutes of Health RO1MH121416
6 · The paper itself

Abstract

The COVID-19 pandemic has posed unique challenges for families and caregivers, as well as for autism-focused clinicians, who are faced with providing a thorough and accurate evaluation of children's specific needs and diagnoses in the absence of in-person assessment tools. The shift to telehealth assessments has challenged clinicians to reconsider approaches and assumptions that underlie the diagnostic assessment process, and to adopt new ways of individualizing standard assessments according to family and child needs. Mandates for physical distancing have uncovered deficiencies in diagnostic practices for suspected autism and have illuminated biases that have posed obstacles preventing children and families from receiving the services that they truly need. This Commentary outlines several considerations for improving diagnostic practices as we move forward from the current pandemic and continue to strive to build an adaptable, sustainable, equitable, and family-centered system of care. LAY SUMMARY: Physical distancing and the abrupt end to in-person services for many children on the autism spectrum has forced clinicians to examine the existing challenges with autism spectrum disorder (ASD) diagnostic assessment and consider things they want to keep and things that should be changed in the years ahead. New approaches such as telehealth both alleviated and exacerbated existing disparities, and brought into stark focus the importance of equitable and timely access to family-centered care. This commentary suggests ways of improving clinical practices related to ASD assessment to continue along this path.

Indexed as

Autism Spectrum DisorderAutistic DisorderCOVID-19ChildHumansPandemicsSARS-CoV-2assessmentautismchallengeschildrendiagnosisdisparitiespandemic

Identifiers

PMID34553489
PMCPMC8646364

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.