ArticlePloS one2021
Breast cancer patient experiences through a journey map: A qualitative study.
Article in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers.
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Who cites it
38 citing papers in PubMed.
- Experiences of rehabilitation one year after breast cancer diagnosis-A focus group study from the ReScreen randomized controlled trial.PloS one · 2025Trial
- Development and usability evaluation of a patient journey-based mHealth intervention for esophageal cancer patients: a three-phase protocol.Frontiers in public health · 2025Trial
- Impact of prior sexual trauma on patient experience and comfort in breast cancer radiation therapy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Co-designing primary and secondary outcome measures for an international phase 3 trial of surgical de-escalation in vulvar cancer through a consumer workshop.Research involvement and engagement · 2026Article
- Long-term breast cancer survivors: experiences, needs, and proposals for person-centred care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- "Hurtled down a track and then thrown off": experiences of longitudinal breast cancer care trajectories of women living with and beyond breast cancer.Breast cancer research : BCR · 2026Article
- Post-treatment adaptation experiences of women breast cancer survivors: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Experiences of hemodialysis in patients with end-stage renal disease: a patient journey map based on a qualitative study.BMC nephrology · 2026Article
- Development of a self-management journey map for people with multiple sclerosis: a qualitative study.BMC neurology · 2026Article
- Perioperative transition experience of patients undergoing shoulder arthroscopy day surgery: a qualitative exploratory study using patient journey mapping.BMC musculoskeletal disorders · 2026Article
- Navigating cancer: Insights from patient journey mapping.PloS one · 2026Article
- Barriers and facilitators experienced by people with neurological disabilities: A South African health systems perspective.Journal of public health in Africa · 2026Article
- Symptom networks in breast cancer patients during chemotherapy and their impact on daily living status.Frontiers in oncology · 2026Article
- The emotions experienced by women undergoing mastectomy over the course of the disease and treatment: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Validation and application of the breast cancer distress thermometer in Chinese patients: Cutoff scores and stage-specific manifestations.Asia-Pacific journal of oncology nursing · 2025Article
- Characterizing authoritative oncology-related key opinion leaders on Weibo: A social media profiling study.Asia-Pacific journal of oncology nursing · 2025Article
- Exploring Challenges Related to Breast Cancer Chemotherapy Among Females in Pakistan: A Qualitative Study.Cancer reports (Hoboken, N.J.) · 2025Article
- Application of patient journey mapping in patients with breast cancer: a scoping review.BMJ open · 2025Article
- Article
- When investigator meets large language models: a qualitative analysis of cancer patient decision-making journeys.NPJ digital medicine · 2025Article
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10 authors.
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Abstract
backgroundBreast cancer is one of the most prevalent diseases in women. Prevention and treatments have lowered mortality; nevertheless, the impact of the diagnosis and treatment continue to impact all aspects of patients' lives (physical, emotional, cognitive, social, and spiritual).
objectiveThis study seeks to explore the experiences of the different stages women with breast cancer go through by means of a patient journey.
methodsThis is a qualitative study in which 21 women with breast cancer or survivors were interviewed. Participants were recruited at 9 large hospitals in Spain and intentional sampling methods were applied. Data were collected using a semi-structured interview that was elaborated with the help of medical oncologists, nurses, and psycho-oncologists. Data were processed by adopting a thematic analysis approach.
resultsThe diagnosis and treatment of breast cancer entails a radical change in patients' day-to-day that linger in the mid-term. Seven stages have been defined that correspond to the different medical processes: diagnosis/unmasking stage, surgery/cleaning out, chemotherapy/loss of identity, radiotherapy/transition to normality, follow-up care/the "new" day-to-day, relapse/starting over, and metastatic/time-limited chronic breast cancer. The most relevant aspects of each are highlighted, as are the various cross-sectional aspects that manifest throughout the entire patient journey.
conclusionsComprehending patients' experiences in depth facilitates the detection of situations of risk and helps to identify key moments when more precise information should be offered. Similarly, preparing the women for the process they must confront and for the sequelae of medical treatments would contribute to decreasing their uncertainty and concern, and to improving their quality-of-life.
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