Evidence map›Paper›PMID 34549349›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2022

Views and experiences of palliative care clinicians in addressing genetics with individuals and families: a qualitative study.

Stephanie White, Jane Phillips, Erin Turbitt, Chris Jacobs

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

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3 · Its place in the literature

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3 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

4 authors.

Stephanie WhiteGraduate School of Health, University of Technology Sydney, 100 Broadway, Chippendale Sydney, NSW, 2008, Australia. stephanie.white@uts.edu.au.ORCID http://orcid.org/0000-0002-5550-6397
Jane PhillipsFaculty of Health, University of Technology Sydney, Sydney, Australia.
Erin TurbittGraduate School of Health, University of Technology Sydney, 100 Broadway, Chippendale Sydney, NSW, 2008, Australia.
Chris JacobsGraduate School of Health, University of Technology Sydney, 100 Broadway, Chippendale Sydney, NSW, 2008, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeA proportion of people with palliative care needs unknowingly have a genetic predisposition to their disease, placing relatives at increased risk. As end-of-life nears, the opportunity to address genetics for the benefit of their family narrows. Clinicians face numerous barriers addressing genetic issues, but there is limited evidence from the palliative care clinician perspective. Our aims are to (1) explore the views and experiences of palliative care clinicians in addressing genetics with patients and their families and (2) generate suggested strategies that support integration of genetics into palliative care.

methodsAn interpretive descriptive qualitative study using semi-structured interviews with palliative care doctors and nurses (N = 14).

resultsThree themes were identified: (1) Harms and benefits of raising genetics: a delicate balancing act, (2) Navigating genetic responsibility within the scope of palliative care and (3) Overcoming practice barriers: a multipronged approach. Participants described balancing the benefits of addressing genetics in palliative care against potential harms. Responsibility to address genetic issues depends on perceptions of relevance and the scope of palliative care. Suggestions to overcome practice barriers included building genetic-palliative care relationships and multi-layered genetics education, developing clinical resources and increasing organisational support.

conclusionsIntegrating aspects of genetics is feasible, but must be balanced against potential harms and benefits. Palliative care clinicians were uncertain about their responsibility to navigate these complex issues to address genetics. There are opportunities to overcome barriers and tailor support to ensure people nearing end-of-life have a chance to address genetic issues for the benefit of their families.

Indexed as

Hospice and Palliative Care NursingPhysiciansHumansPalliative CareQualitative ResearchGeneticsGenomicsImplementation sciencePalliative carePalliative oncologyQualitative research

Identifiers

PMID34549349

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.