ArticleJournal of policy and practice in intellectual disabilities2021
Remote Support for Adults with Intellectual Disability During COVID-19: From a Caregiver's Perspective.
Article in Journal of policy and practice in intellectual disabilities, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
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Who cites it
9 citing papers in PubMed.
- Family Support Experiences of Adult Persons with Intellectual Disability and Challenging Behaviour: A Scoping Review of Qualitative Studies.International journal of environmental research and public health · 2025Article
- Remote support for individuals with intellectual disabilities living independently: a scoping review.International journal of developmental disabilities · 2025Review
- Mainstream Technologies in Facilities for People With Intellectual Disabilities: Multiple-Methods Study Using the Nonadoption, Abandonment, Scale-Up, Spread, and Sustainability Framework.JMIR rehabilitation and assistive technologies · 2024Article
- Experiences of people with intellectual disabilities during the COVID-19 pandemic. A thematic synthesis.International journal of developmental disabilities · 2024Article
- An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review.Annals of medicine · 2023Article
- Care and rehabilitation institutions for people with intellectual disabilities during the COVID-19 pandemic: Polish experiences.International social work · 2023Article
- [The situation of people with intellectual and developmental disabilities in the COVID-19 pandemic-risk factors, problem areas, and measures].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2023Review
- 'It really is quite a different ballgame'. A qualitative study into the work experiences of remote support professionals.Journal of applied research in intellectual disabilities : JARID · 2022Article
- Key learnings from COVID-19 to sustain quality of life for families of individuals with IDD.Journal of policy and practice in intellectual disabilities · 2022Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The reality of people with ID changed during the pandemic COVID-19. Most institutions supporting people with ID switched to remote work. This required some major adaptation to these individuals' new realities, their immediate families, and facility staff. Supporting and monitoring the quality of life of individuals with disabilities and their family members during a crisis is an essential topic of current research. This research project aimed to explore the experiences of parents of adults with ID in relation to remote support provided by public support agencies. In a qualitative study, the authors used semistructured individual interviews with caregivers of people with ID. Data analysis distinguished the following categories: parents as therapists, organization difficulties, material problems, lack of social contacts, positive solutions, and difficult behavior. The results show the difficulties of parents in balancing professional, domestic, and supporting tasks. The study was the first in Poland to report on the qualitative assessment of remote support for people with ID during COVID-19. Further, more extensive research is needed to search for solutions that respect the rights of people with disabilities to professional support.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.