ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2022
The Experience of Alzheimer's Disease Family Caregivers in a Latino Community: Expectations and Incongruences in Support Services.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
35 citing papers in PubMed, 2 syntheses or guidelines pooled it, 45 citations in OpenAlex.
- Factors linked to informal caregiver burden in dementia across Latin America and the Caribbean: A systematic review and meta-analysis.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Pooled it
- Intersectional research on dementia care for post-migrants and ethnic minority groups: a scoping review.Frontiers in dementia · 2025Pooled it
- Latinos' beliefs regarding the role played by nonmedical factors in the quality of Alzheimer's disease care: Findings from a NYC community-based sample.SSM. Qualitative research in health · 2026Article
- Methodological Framework for the Design and Implementation of a US Latine-Hispanic Digital Brain Health Program: User-Centered Design Approach.JMIR formative research · 2026Article
- Latinos' appraisals of and responses to memory problems.Journal of health psychology · 2026Article
- When Care Depends on the Caregiver: Lived Experiences of Latino Families Navigating Dementia Care Pathways.medRxiv : the preprint server for health sciences · 2026Article
- AI-enhanced culturally tailored intervention for Latino family caregivers of persons living with dementia: a feasibility study.The Gerontologist · 2026Article
- Racial and Ethnic Differences in Caregiving Networks and Unmet Care Needs Among People Living With Cognitive Impairment.Research on aging · 2026Article
- "But Then They Don't Use the Same Money to Give Us Services": Attitudes and Perspectives on Dementia Care Community-Based Research in Hispanic Communities.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Unveiling the Hidden Challenges: A Systematic Review of Self-Identified Caregiver Support Needs for Older Adults in Canada.Public health reviews · 2026Review
- Latino Caregiver Experiences With Dementia Care and Healthcare Navigation.Journal of the American Geriatrics Society · 2025Article
- Exploring the unmet needs of Latino dementia caregivers: a qualitative study.The Gerontologist · 2025Article
- Equitable formal care access: examining processes for Hispanic/Latino family dementia caregivers' decision-making.The Gerontologist · 2025Article
- Knowledge and Beliefs About Medical and Non-Medical Interventions to Control Alzheimer's Disease Among Latinos in New York City.International journal of geriatric psychiatry · 2025Article
- Latinx Views on the Roles of Families and Government in Long-Term Care.The Gerontologist · 2025Article
- Article
- Lessons from a Pilot Study of a Culturally Tailored Financial Well-Being Intervention Among Latino Family Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Exploring Caregiving Network Characteristics for Older Adults Living With Cognitive Impairment Across Race and Ethnicity.The Gerontologist · 2025Article
- Convening Hispanic/Latino Caregiving Advisors for Inclusive Research in Dementia Palliative Care.Journal of palliative medicine · 2025Article
- Unmet Needs and Factors Impacting Home- and Community-Based Service Use Among Rural Appalachian Caregivers of People With Alzheimer's and Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
objectivesCurrent theoretical constructs on the utilization of formal support for Latino caregivers focus on familism and exclude the cultural values represented in the service system. The purpose of this paper is to highlight the experience of care for Latino family caregivers to persons with Alzheimer's disease and related dementias (ADRD). We also examine the cultural congruence between provider perspectives with the expectations of Latino ADRD caregivers.
methodWe conducted extended interviews with 24 Latino ADRD caregivers and 10 service providers. Interview transcripts were coded and analyzed using a grounded theory approach.
resultsOur study provides a deeper understanding of Latino caregiving experiences and highlights some of the structural and systematic issues in current systems of caregiver support. While Latino families have very specific notions of care, by upholding notions of familism, there is a tendency to not look deeper into how they may be better supported in caregiving and fall into the "culture trap." The assumption that family should be the natural support network for older adults may lead to health and social systems of care to ignore the specific needs of the Latino population. DISCUSSION: Services are being provided under a model that was established four decades ago and may not reflect current realities. The concept of "an ethics of care" allows us to move beyond familism and explain that underutilization of services may also be due in part to the cultural incongruence between what service providers offer and the perceived needs of Latino caregivers.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.