Evidence map›Paper›PMID 34543172›Full record

ArticleHealthcare policy = Politiques de sante2021

Building Equitable Patient Partnerships during the COVID-19 Pandemic: Challenges and Key Considerations for Research and Policy.

Ambreen Sayani, Alies Maybee, Jackie Manthorne, Erika Nicholson, Gary Bloch, Janet A Parsons, Stephen W Hwang, Aisha Lofters

Abstract read
In one paragraph

Article in Healthcare policy = Politiques de sante, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers.

0numbers the graph read from it
0cells of the map it votes in
29citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

29 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
  4. Article
  5. Article
  6. Article
  7. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025
    Article
  8. Critical patient-oriented research: a fundamental shift in patient engagement.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2025
    Article
  9. Article
  10. Mobilizing the Power of Lived/Living Experiences to Improve Health Outcomes for all.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  11. Article
  12. Through Their Eyes: Using Photovoice to Capture the Capacity-Building Journey of Long Covid Patient Experts.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  13. Involving Knowledge Users in Health Services Research: Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  14. Article
  15. Lived experience and family engagement in psychiatry research: A scoping review of reviews.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  16. Article
  17. Patient partner perspectives on compensation: Insights from the Canadian Patient Partner Survey.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Ambreen SayaniTransition to Leadership Stream Postdoctoral Fellow, Women's College Research Institute, Women's College Hospital, Toronto, ON.
Alies MaybeeIndependent Patient Partner and Co-founder, Patient Advisors Network, Toronto, ON.
Jackie ManthornePresident and Chief Executive Officer, Canadian Cancer Survivor Network, Ottawa, ON.
Erika NicholsonDirector, Screening and Atlantic Canada Lead, Canadian Partnership Against Cancer, Toronto, ON.
Gary BlochAssociate Professor, Department of Family and Community Medicine, University of Toronto; Family Physician, St. Michael's Hospital and Inner City Health Associates; Senior Fellow and AMS Phoenix Fellow, Wellesley Institute, Toronto, ON.
Janet A ParsonsResearch Scientist, Li Ka Shing Knowledge Institute, St. Michael's Hospital; Associate Professor, Department of Physical Therapy and the Rehabilitation Sciences Institute, University of Toronto, Toronto, ON.
Stephen W HwangProfessor of Medicine, Department of Medicine, University of Toronto; Director, MAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, ON.
Aisha LoftersFamily Physician, Women's College Hospital; Associate Professor and Clinician Scientist, Department of Family and Community Medicine, University of Toronto; Chair in Implementation Science, Peter Gilgan Centre for Women's Cancers, Women's College Hospital, Toronto, ON.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The unequal social and economic burden of the COVID-19 pandemic is evident in racialized and low-income communities across Canada. Importantly, social inequities have not been adequately addressed and current public policies are not reflective of the needs of diverse populations. Public participation in decision-making is crucial and there is, therefore, a pressing need to increase diversity of representation in patient partnerships in order to prevent the further exclusion of socially marginalized groups from research and policy making. Deliberate effort and affirmative action are needed to meaningfully engage and nurture diverse patient partnerships by broadening the scope of the patient community to include excluded or underrepresented individuals or groups. This will help us co-develop ways to enhance access and equity in healthcare and prevent the systematic reproduction of structural inequalities that have already been heightened by the COVID-19 pandemic.

Indexed as

Health PolicyPatient SelectionAdultAgedAged, 80 and overBiomedical ResearchCanadaCOVID-19Delivery of Health CareFemaleGuidelines as TopicHealth EquityHumansMaleMiddle AgedPandemics

Identifiers

PMID34543172
PMCPMC8437252

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.