Evidence map›Paper›PMID 34541585›Full record

ArticleDIS. Designing Interactive Systems (Conference)2021

Supporting Remote Survey Data Analysis by Co-researchers with Learning Disabilities through Inclusive and Creative Practices and Data Science Approaches.

Dorota Chapko, Pedro Rothstein, Lizzie Emeh, Pino Frumiento, Donald Kennedy, David Mcnicholas, Ifeoma Orjiekwe, Michaela Overton, Mark Snead, Robyn Steward and 7 more

Open access · goldAbstract read
In one paragraph

Article in DIS. Designing Interactive Systems (Conference), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
4.2field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 4 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors at 2 institutions in 1 country.

Dorota ChapkoCreative Computing Institute, University of the Arts London, London, United Kingdom.
Pedro RothsteinCreative Computing Institute, University of the Arts London, London, United Kingdom.
Lizzie Emeh
Pino Frumiento
Donald Kennedy
David Mcnicholas
Ifeoma Orjiekwe
Michaela Overton
Mark Snead
Robyn Steward
Jenny Sutton
Melissa Bradshaw
Evie Jeffreys
Will Gallia
Sarah Ewans
Mark WilliamsHeart n Soul at the Hub, Heart n Soul, London, United Kingdom.
Mick GriersonCreative Computing Institute, University of the Arts London, London, United Kingdom.
University of the Arts London · GBHeart Research UK · GB

Funding

Wellcome Trust 211043
6 · The paper itself

Abstract

Through a process of robust co-design, we created a bespoke accessible survey platform to explore the role of co-researchers with learning disabilities (LDs) in research design and analysis. A team of co-researchers used this system to create an online survey to challenge public understanding of LDs [3]. Here, we describe and evaluate the process of remotely co-analyzing the survey data across 30 meetings in a research team consisting of academics and non-academics with diverse abilities amid new COVID-19 lockdown challenges. Based on survey data with >1,500 responses, we first co-analyzed demographics using graphs and art & design approaches. Next, co-researchers co-analyzed the output of machine learning-based structural topic modelling (STM) applied to open-ended text responses. We derived an efficient five-steps STM co-analysis process for creative, inclusive, and critical engagement of data by co-researchers. Co-researchers observed that by trying to understand and impact public opinion, their own perspectives also changed.

Indexed as

co-designHuman-centered computing → Human computer interaction (HCI)Learning disabilitysurveytopic model

Identifiers

PMID34541585
PMCPMC7611679
OpenAlexW3176169360

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.