Evidence map›Paper›PMID 34538106›Full record

ArticleThe American journal of hospice & palliative care2022

Conversations About Children When an Important Adult Is at End of Life: An Audit.

Jeffrey R Hanna, Elizabeth Rapa, Mary Miller, Madeleine Turner, Louise J Dalton

Abstract read
In one paragraph

Article in The American journal of hospice & palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jeffrey R HannaDepartment of Psychiatry, University of Oxford, Warneford Hospital, Oxford, United Kingdom.ORCID https://orcid.org/0000-0002-8218-5939
Elizabeth RapaDepartment of Psychiatry, University of Oxford, Warneford Hospital, Oxford, United Kingdom.ORCID https://orcid.org/0000-0001-8818-8148
Mary MillerDepartment of Palliative Care, Sir Michael Sobell House, Oxford University Hospitals NHS Foundation Trust, Oxford, United Kingdom.
Madeleine TurnerDepartment of Psychiatry, University of Oxford, Warneford Hospital, Oxford, United Kingdom.ORCID https://orcid.org/0000-0001-9878-7259
Louise J DaltonDepartment of Psychiatry, University of Oxford, Warneford Hospital, Oxford, United Kingdom.ORCID https://orcid.org/0000-0003-1923-5769

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeHealth and social care professionals report it challenging to have conversations with families when an important adult in the life of a child is at end of life, often feeling this aspect of care is the responsibility of other colleagues. This study aimed to understand professionals' perceived role in family-centered conversations as part of routine care at end of life, and how to promote this element of care in clinical practice.

methodsAn audit was completed with 116 professionals who work in palliative care including doctors and nurses that attended a 2-day virtual congress.

resultsProfessionals (73.2%) felt confident about starting a conversation with adult patients at end of life about important children. However, enquiring about relationships with children was largely dependent on the age of the patient. 64.7% of respondents reported signposting families to websites and services that provide family support. Most professionals (76.7%) wanted training to equip them with the skills and confidence to having family-centered conversations at end of life, with videos demonstrating how to provide these elements of care the most preferred option.

conclusionsShort training resources should be developed to equip professionals with the necessary skills toward having conversations about children with patients and relatives in clinical appointments. There is a need for professionals to ask every patient about important relationships with children.

Indexed as

CommunicationTerminal CareAdultChildDeathFamilyHumansPalliative CareQualitative ResearchSocial Supportchildrencommunicationdyingend of lifefamily-centered carehealthcare professionalspsychosocial supportsocial care professionals

Identifiers

PMID34538106
PMCPMC9210112

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.