Evidence map›Paper›PMID 34537025›Full record

ArticleBMC health services research2021

Playful strategies to foster the well-being of pediatric cancer patients in the Brazilian Unified Health System: a design thinking approach.

Leandro Miletto Tonetto, Valentina Marques da Rosa, Priscila Brust-Renck, Megan Denham, Pedro Marques da Rosa, Craig Zimring, Irini Albanti, Leslie Lehmann

Open access · goldAbstract read
In one paragraph

Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
2.0field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 11 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 7 institutions in 2 countries.

Leandro Miletto TonettoGraduate Programs in Design and Psychology, Universidade do Vale do Rio dos Sinos, Porto Alegre, Rio Grande do Sul, Brazil. ltonetto@gmail.com.
Valentina Marques da RosaDepartment of Industrial Engineering, Universidade Federal do Rio Grande do Sul, Porto Alegre, Rio Grande do Sul, Brazil.
Priscila Brust-RenckGraduate Program in Psychology, Universidade do Vale do Rio dos Sinos, São Leopoldo, Rio Grande do Sul, Brazil.
Megan DenhamGeorgia Tech Research Institute, Atlanta, GA, USA.
Pedro Marques da RosaPontifícia Universidade Católica do Rio Grande do Sul, Hospital São Lucas da PUCRS, Porto Alegre, Rio Grande do Sul, Brazil.
Craig ZimringGeorgia Institute of Technology, Atlanta, GA, USA.
Irini AlbantiHarvard University, Harvard Humanitarian Initiative, Cambridge, MA, USA.
Leslie LehmannDana-Farber Cancer Institute, Boston Children's Hospital, Boston, MA, USA.
Universidade do Vale do Rio dos Sinos · BRDana-Farber Cancer Institute · USGeorgia Institute of Technology · USGeorgia Tech Research InstituteHarvard University · USPontifícia Universidade Católica do Rio Grande do Sul · BRUniversidade Federal do Rio Grande do Sul · BR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCancer care can negatively impact children's subjective well-being. In this research, well-being refers to patients' self-perception and encompasses their hospital and care delivery assessment. Playful strategies can stimulate treatment compliance and have been used to provide psychosocial support and health education; they can involve gamification, virtual reality, robotics, and healthcare environments. This study aims to identify how playfulness, whenever applicable, can be used as a strategy to improve the subjective well-being of pediatric cancer patients in the Brazilian Unified Health System.

methodsSixteen volunteers with experience in pediatric oncology participated in the study. They were physicians, psychologists, child life specialists, and design thinking professionals. They engaged in design thinking workshops to propose playful strategies to improve the well-being of pediatric cancer patients in the Brazilian Unified Health System. Data collection consisted of participatory observations. All activities were video recorded and analyzed through Thematic Analysis. The content generated by the volunteers was classified into two categories: impact of cancer care on children's self-perception and children's perceptions of the hospital and the care delivery.

resultsVolunteers developed strategies to help children deal with time at the hospital, hospital structure, and care delivery. Such strategies are not limited to using playfulness as a way of "having fun"; they privilege ludic interfaces, such as toys, to support psychosocial care and health education. They aim to address cancer and develop communication across families and staff in a humanized manner, educate families about the disease, and design children-friendly environments. Volunteers also generated strategies to help children cope with perceptions of death, pain, and their bodies. Such strategies aim to support understanding the meaning of life and death, comprehend pain beyond physicality, help re-signify cancer and children's changing bodies, and give patients active voices during the treatment.

conclusionsThe paper proposes strategies that can improve the well-being of pediatric cancer patients in the Brazilian Unified Health System. Such strategies connect children's experiences as inpatients and outpatients and may inform the implementation of similar projects in other developing countries.

Indexed as

FamilyNeoplasmsAdaptation, PsychologicalChildCommunicationHumansPainCancerChildrenDesign for healthDesign for well-beingDesign thinkingPatient experienceService designSubjective well-beingSupportive careUser experience

Identifiers

PMID34537025
PMCPMC8449889
OpenAlexW3199977646

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.